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Old 11-04-2014, 12:01 PM
Amber's mum Amber's mum is offline
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Default Surgery 30th April

My daughter is 13 & set to have surgery 30th April 2014. I first noticed her curvature when she was in year 6 (Dec 2012) & she was then diagnosed by specialist Feb 2013 when her curvature was at 40 degrees. She then went to 55 & then 63 degrees at subsequent appointments. At her last check up her curvature was at 72 degrees. Due to the severity & fast progression she is now having surgery in a few weeks . We are now all quite anxious & nervous...

I think the most devastating aspect for her is that she will not be able to play soccer or compete in athletics (long jump & sprints). What did others do during recovery months to stay fit?

I have tried to prepare her as much as possible but any advice or suggestions from parents or patients would be greatly appreciated.
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Old 11-04-2014, 04:11 PM
Rodverta Braefusion Rodverta Braefusion is offline
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Default Re: Surgery 30th April

Hi Ambers mum, so sorry to read about Ambers progression. I can also relate to not being able to go back to sports. I was told no contact sports as well after surgery. With regards to fitness after surgery, my surgeon advises walking everyday. In fact from Day 1 post-op, most surgeons will have the physios greet you in the morning and then you are up and on your feet. Its a couple of steps first, then as your pain permits, you keep walking as much as you can. Abdominal bracing is another form of exercise that they tell you to do. This for the first 6 weeks is done for strengthening and as along term exercise is to keep you spine stronger and less prone to injury. Be guided by your surgeon and the way Amber is feeling and the outcome should be a positive one. Best wishes, RB
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Old 11-04-2014, 09:36 PM
Trace Trace is offline
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Default Re: Surgery 30th April

Hi Amber's Mum. Not being able to do sport was one of the hardest things for my daughter to deal with post surgery. As RB said the physios will get her up walking ASAP and she will be encouraged to walk lots during her recovery. From what I've read on the forum most of the kids who swim seem to recover well. Also swimming is one of the sports they can return to quicker (3 months I think) whereas most other sports are 9 months (some states differ I think). So if your daughter likes swimming maybe that's something she could consider. But walking is definitely good..just not always appealing to kids!? Other hobbies could help pass the time too. Wishing you and Amber all the best for her upcoming surgery
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Old 11-04-2014, 10:32 PM
jane jane is offline
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Default Re: Surgery 30th April

Hi ,
Good to see your post Emily bCk doing any gymnastics yet? Hi Amber's Mum...welcome to the forum...we are all here to help each other...mostly mums who are coming to terms with the diagnosis our children have received . I have met so many caring lifelines through this forum And I hope to give back some of the reassurance that members gave me. yes, swimming can happen 3 months post surgery...although it would seem that some kids go back to it sooner and all seem to return to pre-surgery fitness fairly quickly. My daughter Sophie actually swam faster after surgery because her lung cApacity has improved even though she still has obvious rib rotation and hump. One of the girls on the forum has made nationals in swimming which is just Awesome. Sophie is 22 months down the track from surgery and runs, swims, plays badminton, does bike spin classes and gym circuits and generally does everything she did before surgery. Running is a non-contact sport and so is usually not too far down the track of things you can return to. Swimming is considered the best post surgery exercise though for core body strength and non-jarring of the newly fused spine. If your child is used to playing/doing sport all the time as mine is then At least swimming will offer so etching that she doesn't have to wait ages to do. Sophie also went seriously skiing exactly 12 months post surgery and managed quite hard runs.
I hope the surgery goes very, very well for you. remember we are all here for you and when things are tough during the time in hospital all you have to do is ask and someone will be able to give you hope/reassure you.
All the best,
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Old 13-04-2014, 03:33 PM
Eliz Eliz is offline
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Default Re: Surgery 30th April

A very scary time for you, with surgery looming so close.
Your daughter will come to realise that her sporting career will just be on hold for a while. While she is in early recovery she will not be so concerned about losing her fitness but new challenges will present on a daily basis. The endurance and strength she has will help her immensely, mentally and physically.
This will be just as if she broke her leg, the bone grafts in all the facet joints have to create a strong union like a broken bone mending. The screws and rods are there to hold it still however it is very important not to stress them until a good strong fusion has occurred. Your surgeon will give you a timeline of when you are allowed to do certain activities and you need to follow that. There is no reason to exercise too soon, this is an investment in the future, she will be back doing everything eventually but she needs to be aware not to rush it. Very difficult to sit on the sideline when she is so competitive but this really is a small hiccup in a long healthily life!
All the best, Liz
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Old 13-04-2014, 03:47 PM
abbi2103 abbi2103 is offline
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Smile Re: Surgery 30th April

Hi Amber's Mum
I'm a lot older than your daughter at 37 years old and now 8 weeks post op. My top curve was almost 70 degrees and the lower curve was about 55 degrees, my correction is now 25 degrees and my back is lovely and straight. I had my post op appointment two weeks ago and all is healing really well. My surgeon said I'm now able to go back to the gym and cycle on a stationary bike, swim and lift weights up to 5kg, so I'm very pleased. I did walk a lot straight after surgery, it was some thing that was mentioned quite a lot on the forum, as it will help the healing process. I was able to drive after 6 weeks, which at 6 weeks was the mark I felt so much better, and more comfortable in what I could do. I too was worried about not being able to do fitness or going to the gym, but really the last 8 weeks have gone really fast.
Good luck to you all. Any question please don't hesitate to ask.

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Old 14-04-2014, 09:01 PM
Trace Trace is offline
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Default Re: Surgery 30th April

Hi Jane. Em hasn't gone back to gymnastics but is coaching twice a week. She's doing aerobics 3 times per week for school which she's loving. Gave school tennis a try too. How's Sophie going? Still swimming? We had our 12 month checkup in March. Surgeon was happy with everything and besides seeing him in a couple of weeks for a post op visit for minor surgery done to her scar, we don't need to see him until 2015. Hope you & Sophie are doing well.

Wishing Amber all the best for her surgery and recovery.
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