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Old 03-02-2011, 01:49 PM
Chez Chez is offline
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Default Waiting for surgery

Hi everyone,
Im new to this site, my daughter who is 16 and has cerebal palsy has a 95 per cent curvature and on a waiting list for surgery within the next 12 months. Im really concerned as I dont know much about this condition, I have spoken to the specialists and im well imformed about the procedure, the doctors said she has to have 2 operations due to the severity of the curvature and maybe upto 6 weeks in hospital im really stressed about the whole situation from the procedure to the recovery. I would appreciate any advice or opinions the may give me a little insight.
regards chez
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Old 03-02-2011, 05:18 PM
Jen Jen is offline
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Location: Sunshine Coast, Queensland,
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Default Re: Waiting for surgery

Sent you a private message Chez.
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Old 04-02-2011, 11:35 AM
caysula caysula is offline
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Default Re: Waiting for surgery

Chez my heart goes out to you and your daughter, scoliosis is a huge issue in itself and you have cerebal palsy to deal with as well. My daughter had her surgery nearly 3 weeks ago for a 55degree curve. I spent the preceding weeks stressing and worrying and it all amounted to nothing. Her surgery went really well and she is recovering nicely. Do not fear the surgery, while we only had one procedure, my daughters classmate had a severe curve 80+ and had two surgeries a few years ago and she is also doing really well. From memory she spent 8 days in hospital after one and then 12 days after the second procedure. Admittedly, as a parent is it very hard initially to see your child in pain, but it all passes very quickly, so trust the doctors and yourself that it will all be worth it in the long run. If you have any question please ask, you can private message me anytime.
best regards
Sue
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Old 11-02-2011, 11:05 AM
Chez Chez is offline
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Default Re: Waiting for surgery

Thanks sue and Jen for our messages, Im just really concerned one surgery i can handle but thought of two is just too much my concern is the actual going under and coming out of an gereral as we have had some bad side effects before. Sarah was an identical twin I lost her twin she was stillborn to get Sarah this far has been a battle I keep saying no more surgery then scoliosis comes along. Im just hoping after the surgery her quality of life will improve she is a battler like all our kids it seems that the kids can handle it better than the parents thanks chez
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Old 14-02-2011, 08:51 PM
Dom's mum Dom's mum is offline
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Default Re: Waiting for surgery

Hi Chez,
Can't even imagine what you and your daughter are going through, hard enough going through one surgery yet alone two when she has already been through so much. I was so sorry to hear about her sister too, again don't know what you feel as twins are so unique but Dominic's eldest brother Joshua died at birth so I know a little about how precious she is to you.
Dominic only had to have one scoliosis surgery but in the future he will have surgery on his chest for pectal excavation, he has become very reluctant to have that - memories are too fresh! But on a positive side he said the other day that "he likes his new body and how his back looks". He can see that it has been worthwhile, I hope your daughter will be able to see that as it will make going in the second time that much easier.
Take care and if you have any questions please ask
Annette
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Old 14-02-2011, 09:51 PM
caysula caysula is offline
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Default Re: Waiting for surgery

Dear Chez and Annette

my heart goes out to both of you, the pain of your losses and hardships with the survivors must have been hard to deal with, you are both champions along with the kids and all of your families, our little scoliosis surgery seems insignificant in comparison and I feel guilty for it all being so easy, who knows what the future holds for each of us, but one the is for sure, we will all find the strength to carry on-isn't that part of a song?- I admire your strength and good luck in the future.
happy valentines day to you all as well
Sue
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