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Old 04-04-2013, 11:28 AM
Kayla1 Kayla1 is offline
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Default Any information would really help?

Hi
I'm new to this, my daughter (eight years old) was diagnosed with Scoliosis just before Xmas We are going to have an MRI done and from there the specialist will decide what we need to do. She has had general x-rays and the curve was at 24, can anyone let me know if they have been in a similar situation and what their doctor suggested???
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Old 05-04-2013, 07:51 PM
Trace Trace is offline
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Default Re: Any information would really help?

Hi Kayla1. It sounds like you are doing the right thing already by seeing a specialist. Are you seeing an orthopaedic surgeon or a scoliosis specialist? My daughter was 12 when we first discovered she had scoliosis. Our GP back then told us not to worry as her curve was so minor - unfortunately didn't reccomend that we go to a specialist and get their opinion. She had surgery 1 month ago today at the age of 15. I'm no medical specialist but they may suggest bracing for your daughter or just monitoring ie. watching her growth and taking xrays and monitoring any changes in the curve. Have a read of the posts on this site (in all categories). Most people have had surgery but some try other means eg Schroth method, physios etc. We tried physio, chiro and yoga but unfortunately didn't help our daughter. My advise would be speak to as many people as possible (particularly people that know what severe scoliosis is - not the people that say they have it but can't tell you the size of the degrees of their curve or have never seen a specialist. I only say this as we were told this by several people - but they don't realise that the curve can progress in some people unlike their own cases), read as much as possible and stay positive. This forum is excellent for talking to people who have gone/are going through the same ordeal as you and your daughter (& family) are at the moment. You are probably still in shock if you are like most of us when we first discover that our child has scoliosis. Write down questions to ask your specialist so you don't forget when you see him/her. Wishing you all the best for your daughter. Trace
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Old 17-04-2013, 11:51 AM
Loulamb13 Loulamb13 is offline
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Default Re: Any information would really help?

Hi Kayla1. We are in a similar position with our 10 year old daughter. I have scoliosis which was treated/braced as a teenager and later last year I spotted that our younger daughter looked uneven in her hips and alarm bells rang. GP agreed and referred her to a Pediatric Orthopaedic specialist in Melbourne. Initial xrays in November showed the lumbar curve at 22 degrees and the Ortho Dr confirmed scoliosis and we agreed to wait & monitor for 3 months. In the meantime, she had an MRI to rule out anything else causing the scoliosis (specialist contacted me with good results immediately which was great). We saw the Ortho Dr on Monday and the new xrays show the curve now to be 31 degrees. So it isn't stabilising or going away, as he put it! Her curve is T11- L4. So our next step is to have a fully customised Boston style brace made to see if we can slow the progression of the curve as she heads towards some serious growing (she hopes!) and puberty. Ortho Dr is positive about her outlook as she is a skinny minny like me and bracing can be sucessful in her circumstances. As the Ortho Dr and many on this forum have said though, it depends on our daughter wearing the brace and checking it is fitting correctly. Our daughter is feeling very positive about the process at the moment (after initial OMG moments!) mainly as she desperately wants to avoid future surgery if possible. We hope the brace will be ready in about 3 -4 weeks and will go from there. Our daughter sat and read lots of the posts on this fabulous forum which really helped her to realise that she is not the only one in this situation. She will no doubt be posting to see if any other kids out there would like to share stories and support as they go through this. We plan to name the brace "Lizzie" after Jane Austens Elizabeth Bennett in Pride & Prejudice as it does look a bit corset like!! Anything to take the strangeness out of the situation and inject some humour will help! So look out for posts from her about adventures with Lizzie as we go on! Good luck with it all.
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Old 20-04-2013, 04:21 PM
Veronica Veronica is offline
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Default Re: Any information would really help?

Hi Kayla1,
My 13 year old daughter was diagnosed when she was 2. It was deemed only slight back then and it wasn't until early last year that we noticed that it had progressed quite a lot.
In August last year her curve was sitting at 34 degrees and we were advised that bracing with a boston brace was the direction to head in. She has had the brace now since October and we are unsure at this time if it has helped slow/stop the curve as she is due to return for another xray in July. When we had the initial consult in a Melbourne clinic we were informed that any curve over 30degrees was generally suitable for bracing. I have no idea what the curve degree for surgery is and am going to ask when we go back.
I am unable to comment too much on the comfort or feelings associated as my daughter has an moderate intellectual disability and is non-verbal for the most part. I do know that she doesn't seem to mind wearing it (provided its not too hot) and that if we regularly change her singlet under it she is more comfortable.
We attend a scoliosis clinic in a Melbourne hospital who have advised us that we need to have xrays every 6months to monitor the curve & every three months for the orthatist to check the brace. It may well be different for each case.
Hope this helps,
Veronica
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