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Old 07-11-2010, 08:50 PM
Dom's mum Dom's mum is offline
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Default Countdown to surgery

Oh boy, two weeks today and Dominic will be in hospital awaiting surgery on the Monday. The motel is booked for the rest of the family, finance organized and I have made contact with the hospital social worker (why don't our kids have some sort of support?!) We are being really positive but it is getting a bit too real now. Dom is talking about it a lot more and getting pretty worried. We let him talk and then get on with life. He has some great mates who have organized a few outings which is so nice. I am working every hour there is then cleaning out cupboards etc... because they need doing but too much time to think is dangerous.
I know he will be okay and we will look back soon and wonder what all the fuss was about but the buildup is hell isn't it? So some tips please... I have been told to take lots of pillows for the trip home anything else you found helpful in hospital and afterwards would be great.
Thanks
Annette
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Old 08-11-2010, 07:29 PM
ferris ferris is offline
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Default Re: Countdown to surgery

When our son was in hospital last year the one thing he always asked for was photo's (his pet, family and friends). So I would suggest putting together a small album. Good luck with everything.
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Old 10-11-2010, 07:40 PM
Jen Jen is offline
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Default Re: Countdown to surgery

Annette, this is the worst time. There's no easy way to get through it. Is he able to exericise? Are you able to exercise? I found fitness eased my mind, made me braver, able to face anything.

For you both now, I would advise eating very healthily, getting yourself into tip top shape physically, to make this journey easier. Think about the light at the end of the tunnel, as opposed to today, or next week, but the desired result. How do you want Dom to be faring in 6 months? Think about that and look forward to life being back to normal. That will keep you sane, and help the time pass by less painfully. Wishing Dom and his whole family an easy ride through this and the very best outcome possible. Good luck!
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Old 14-11-2010, 09:03 PM
Rodverta Braefusion Rodverta Braefusion is offline
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Default Re: Countdown to surgery

Hi Annette, hope all is well in the lead-up to Doms surgery. I can't recall what levels he is being fused, but he may require a toilet seat raiser, a grabbing tool.......check with the physios and see what they recommend to make his recovery a little easier. It's hard to say what he might need in hospital. I took along a book with me, however, in between my walks, visitors etc, i got so tired that i just slept. I had a TV in my room and I didn't even watch it once! I was soooo happy that i was able to walk without pain, that I spent every waking moment walking as much as i could. If his appetite is a little lousy after surgery (when he gets home) try some healthy shakes. A lot of rest and sleep is also great for healing. If i think of anything else will post more later.
Take care and best wishes to you, Dom and your family.
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  #5  
Old 15-11-2010, 01:26 PM
Anne Newcastle Anne Newcastle is offline
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Default Re: Countdown to surgery

Hi Annette

This is the first time I have been on this forum (didnt even know it existed till last week). My daughter had her surgery in 2005, and recovered relatively quickly. She had a target to go on a school camp 5 weeks from her surgery, what a great motivator. The first couple of days will be the hardest, both on your son but also on yourself. It is hard to see them lying in a hospital bed (you need to remember to take care and time out for you). I took great comfort from knowing that it was only for a short time and that the other side was going to be much better for her, both physically and mentally. My daughter is now 18 and has been able to experience all the things her girlfriends have, including sport and social activities. Her specialist only put one limitation on her, no bungy jumping. She still knee-boards and has tried water skiing, has been to the fun parks in queensland and enjoyed everything that she tries.

Children are very resilient and with the right positive thinking and support from their family, they do get through the surgery and recovery, you may have down days, but I found that I needed to turn them around to a positive, that what my daughter going through was for the best

Our daughter went to (edited by Admin to remove hospital name) and the staff were the most compassionate and supportive people, always encouraging the children to get better and not expecting too much from them.

Best wishes to your son and family next week
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  #6  
Old 17-11-2010, 10:24 AM
Gavman Gavman is offline
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Default Re: Countdown to surgery

Hi Annette, I want to wish your son dominic all the very best with his upcoming surgery! My apologies that I didn't log into this great forum for a while!

But I've sent you a p.m regarding your son and I'm more than happy to talk to him/answer any questions that he may have regarding the surgery!

Best Wishes!

Gavin
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  #7  
Old 17-11-2010, 08:58 PM
Dom's mum Dom's mum is offline
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Default Re: Countdown to surgery

Hi Gavman, Jen, Anne, Rodverta & Ferris,
Excuse the joint reply but the days are disappearing and I seem to be losing hours. Thanks for all the suggestions and good wishes it certainly does help and there are things I just wouldn't have thought of. Hard when you are a couple of hours away from home as you can't just duck back for something.
Dominic is pretty nervous but we are all staying positive. Action packed days with exams (he thought that sucked them being on the week before he went in!), family catch ups, tennis etc. My husband wanted to cancel tennis in case he hurt himself but I am more worried about the sore throat his brother has, told him we loved him but to keep his distance!
Jen, I liked the idea of keeping fit, does mowing half the neighbourhood lawns but eating chocolate count? "Mr Cadbury" and I have become great friends with stress taking its toll! Keeping busy to try and avoid the "demons".
Sure we will look back on this and wonder what all the fuss was about. Thanks again and we will keep in touch.
Annette
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Old 20-11-2010, 03:43 PM
Hobbs Hobbs is offline
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Default Re: Countdown to surgery

Hi,
I Have just become a member today.....Thank you for your entry as it was exactly what I wanted to know aswell... My 13 year old daughter had her first spinal clinic appointment 5mths ago and they recorded two curves at 25 and 45 degrees, last friday her second appointment showed the deteriation is now at three curves 30,62 and 60 degrees....we are preparing for surger next year where she will have a large section of her spine fused, but first require an assessment from her cardiology team and a MRI etc....the waiting time and the unknown and trying to work out what we need to be prepared is mentally exhausting and scarey. She starts high school next year so there are also all the additional unknowns concerning what to tell the school and what will be required there to support her.
I look forward to hearing from you and how your journey has come along- and any hints you can now forward on to us that will help in preparing for the surgery and the recovery and also schooling. !
Cheers
Louise
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  #9  
Old 20-11-2010, 05:43 PM
Hobbs Hobbs is offline
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Default Re: Countdown to surgery

PS. I wanted to say best of luck and that I will be thinking of you and sending positive vibes in your direction.
That last posting was a bit self absorbed but it was only yesterday that we saw the surgeon and realised surgery is inevitable...so please forgive me we are at a stage where every second of the day our thoughts are absorbed trying to come to terms with what this whole situation means. With that in mind I am grateful for this forum.
Cheers
Louise
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  #10  
Old 20-11-2010, 10:52 PM
Dom's mum Dom's mum is offline
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Default Re: Countdown to surgery

Hi Louise,
Thanks for your good wishes. We are pretty anxious now and I should be in bed! Haven't packed yet, have to drive to Sydney tomorrow for 2pm check in and surgery 8am Monday. Maybe the "fairies" will work miracles overnight!
So sorry for where you are at, it is overwhelming. I will be in touch once we are done so we can "chat" more. Try to take care of yourself.
Annette
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