Scoliosis Australia Forums  

Go Back   Scoliosis Australia Forums > Adults > Non-surgical management

Reply
 
Thread Tools Search this Thread
  #11  
Old 03-11-2012, 10:31 AM
Linwessie Linwessie is offline
Registered User
 
Join Date: Oct 2012
Posts: 13
Default Re: Hi, I'm new and not an alien

I know this sounds just as rediculous, but in my ideal world it would be nice if we could be two going at the same time to a specialist, book surgery for the same day and end up next to each other. To share makes it so much easier. But really, I am gonna give this Schroth exercises a definate go. If i find it stops the progression I will be eternally greatful and just carry on with it till i'm an old lady. I saw on telly the other night about a lady who is a 100yrs and she still does exercises every day of her life to keep her fit and healthy so i don't see the schroth exercises as a life long curse.
So abbi, have you decided yet if you are gonna go for the op or try the schroth first?
Reply With Quote
  #12  
Old 03-11-2012, 02:43 PM
abbi2103 abbi2103 is offline
Registered User
 
Join Date: Jan 2011
Posts: 18
Default Re: Hi, I'm new and not an alien

Hi Rosie thanks so much for your positive words, it is very helpful. I am really tring hard to think of all the good things which will come out of this.
Reply With Quote
  #13  
Old 07-11-2012, 06:45 PM
Jen Jen is offline
Registered User
 
Join Date: Oct 2009
Location: Sunshine Coast, Queensland,
Posts: 448
Default Re: Hi, I'm new and not an alien

Hi Linwessie, It's normal to be terrified of this surgery. It's major and many of us had never had surgery before this scoli surgery. I thought I was the worst chicken in the world, but obviously there are a whole flock of us here! But you will get through it, because we did! I cancelled my first appt for surgery, it was in September. I was a mess, saw my GP who totally understood, and gave me a mild anti-anxiety medication. It helped enormously and would recommend it. I began to sleep again, and I could think of things other than the surgery again. Then, I set about getting as fit as I could. As my fitness grew my anxiety waned further. Soon, I felt I could face anything. By the time my second surgery date (March 3) came around, I was just very keen to get it done, no fear whatsoever, just wanted it over so I could stop thinking about it. It went very well. I had a brilliant surgeon and he gave me back my life. It was SO worth all the anxiety leading up to surgery. It helps to talk about it, so come here and ask questions. It helps to have those questions answered, to get a better picture of what you're facing. Read as much as you can about it, in fact there's an excellent book doing the rounds of forum members, about the surgery, but I'm not sure who has it at the moment. Good luck! Try to think more of life after surgery, a much better life, as opposed to thinking about the actual surgery, this will help get you through.
Reply With Quote
  #14  
Old 09-11-2012, 12:01 PM
Linwessie Linwessie is offline
Registered User
 
Join Date: Oct 2012
Posts: 13
Default Re: Hi, I'm new and not an alien

Thanks Jen. Very good to hear others are so fearful as I am. I must say after two weeks now since hearing this 'bad news' and talking loads about it to whoever is available, I slowly starting to convince myself that it really isn't that bad. I have just met a lady this morning who had spine fusion surgery 8 years ago and she is in her early 70s now. She said yes, it's painful, but so much better after the op and really it isn't so terrible as one thinks it is. So I am already getting so brave that i might consider it, but still gonna give schroth a try. I will most certainly get those anti anxiety tabs way before the time and the week before going in I'll dose up heavily.
Will defo ask more in the future and will give my opinion on Schroth. I am quite exited about that.
x
Reply With Quote
  #15  
Old 10-11-2012, 07:59 PM
abbi2103 abbi2103 is offline
Registered User
 
Join Date: Jan 2011
Posts: 18
Default Re: Hi, I'm new and not an alien

Hi Linwessie you are so right, how nice would it be to go through the whole operation process at the same time. I will be going through with the op next year. I have to wait a year as we have only just taken out private insurance in June. Just want to get it over and done with now. Deep down I know its for the best. Let me know how you get on.
Reply With Quote
  #16  
Old 10-11-2012, 08:37 PM
Silvercat Silvercat is offline
Registered User
 
Join Date: Mar 2012
Posts: 26
Default Re: Hi, I'm new and not an alien

Hi! I'm in Adelaide too and have a similar story to yours. We have a good scoli specialist here who you should go to see before you spend a lot of money on the Schroth method.

I haven't had surgery yet but will probably have it within the next year or two. I'm 43 and my top curve is 45 degrees. I'm happy to talk with you on the phone if you like (mobile phone number removed by admin for privacy reasons).

Cheers

Lisel
Reply With Quote
  #17  
Old 13-11-2012, 02:13 PM
Rodverta Braefusion Rodverta Braefusion is offline
Registered User
 
Join Date: Oct 2009
Posts: 396
Default Re: Hi, I'm new and not an alien

Hey Silvercat, are you seeing whom I think your seeing?
Reply With Quote
  #18  
Old 14-11-2012, 09:42 AM
Linwessie Linwessie is offline
Registered User
 
Join Date: Oct 2012
Posts: 13
Default Re: Hi, I'm new and not an alien

Hi Silvercat, please send me a private message with the name of the surgeon/specialist. I must say, my mind has processed all the info now up to date and i still can't believe that I have to go through an op while at the moment I am not even conscious of a problem. I am worried that I will be less able after op and have pain whereas now I don't have any pain or any mobility problems.
Reply With Quote
  #19  
Old 22-11-2012, 12:11 AM
Silvercat Silvercat is offline
Registered User
 
Join Date: Mar 2012
Posts: 26
Default Re: Hi, I'm new and not an alien

Hi Rodverta

yes!

Silvercat
Reply With Quote
  #20  
Old 22-11-2012, 05:23 PM
Nat1972 Nat1972 is offline
Registered User
 
Join Date: Nov 2012
Posts: 5
Default Re: Hi, I'm new and not an alien

Hi,
I'm still waiting to see specialist to find out if surgery is on the cards. Unlike most on this forum, the idea of surgery is a beacon of light in a very dark painful world for me. I was told as a teen that surgery wasn't an option as I had naturally fused vertebra that meant the curve shouldn't increase. Now, 25yrs later, I live in constant pain, I'm completely dependent on fentanyl (very strong opioid- think morphine) and I'm only hanging in there as I have young children (9,8,2). I've had to give up work, my marriage couldn't survive the stress and I am almost housebound. I don't look any different; most people only notice a 'stiff neck' at most. Under the skin, tho, is a whole different story. I had given up on surgery until I joined this forum. Now, I'm not taking the word of specialist from 25yrs ago, or from the myriad of specialists I've seen since then. My GP was very happy to refer me to the specialists listed on this website (he even got the web address to have a look himself- awesome is not high enough praise for my GP he's saved my life) and now I have to wait for news. Where everyone on this site tells of being scared of surgery, I'm scared I'm going to get the same response I've always had, which would end any hope I have of seeing grandkids. As for the surgery itself, my mother has woken while under and it was picked up immediately. She also struggles to come back out (damned whichever way she goes poor woman!). I've had numerous surgeries now and I'm usually thinking to myself that'I don't really need my appendix out/maybe I could just push another couple of hours to have the baby/and another baby/ do I really need to fix the probs from tearing so badly during first forceps delivery/ and so on. Then they knock me out and I wake up so glad to be at the other end and eager to move on. I'm sure if I do get the good news of surgery, I'll feel the same way before and after.
P.S. If I wasn't in pain I doubt I'd have the surgery. I've spent over 20 yrs in progressively worsening pain. Ultimately tho, I'd find the best doc/specialist for you and do what they recommend.
Cheers, Nat
Reply With Quote
Reply

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off

Forum Jump


All times are GMT +10. The time now is 09:44 AM.

This forum is a project of

  
Spine Society of Australia

Powered by vBulletin
Copyright ©2000 - 2019, Jelsoft Enterprises Ltd.