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Old 18-03-2011, 09:20 PM
blackbetty blackbetty is offline
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Hi everyone,

Well as the title suggests I am new here. I'm not new to scoliosis though, I was diagnosed at 15 and was told by my doctor that there wasn't much they could do for me. So anyway fast forward 17 years and I am now 32. Over the years I have learned to live with the mild to moderate pain from the my scoliosis but have also had a few bouts of sciatica and neck pain.
But just recently I had severe neck/shoulder pain which prompted me to ask for x-rays as I have not had any since I was first diagnosed.
Well not only has my scoliosis progressed I also now have cervical kyphosis. I'm not sure of the degree of either but I can tell from the x-ray that my curve has increased. I dont have private health cover and have been told that I have to wait until July to see a specialist. It's been three weeks since the pain started and it doesn't seem to be lessening at all.
So i'm just wondering if anyone else has had trouble in Perth with waiting to see a specialist?
Also, can you post pics on this forum?
Thanks for reading
Betty
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Old 19-03-2011, 01:06 PM
Admin Admin is offline
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Default Re: New to the forum

Welcome to the forum, blackbetty.

You cannot post images in the forum posts but you are able to link to them. There are a number of free sites, such as Flickr, that you can upload images to and then link to those images.
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Old 19-03-2011, 03:54 PM
Jen Jen is offline
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Default Re: New to the forum

Hi Betty. I can't help you much with your questions re specialists especially in the Perth area, but wanted to welcome you to the forum. I hope someone from the Perth area comes along and can help you with your question. If you have any questions about scoliosis, there's generally someone who can answer them, and if not, you can post on Dr. Scoliosis' forum. Welcome!
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Old 19-03-2011, 04:55 PM
Christine Christine is offline
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Default Re: New to the forum

Hi Betty

I have a very similar story, being diagnosed in my teens, told nothing much can be done so plodded along suffering with yep sciatica and all sorts of pain. Now I am 48 and my curves are much worse. I live in Hobart and have been waiting four months to see two specialists. I have seen one in a private practice in Sydney recently, and have been referred by the other specialist to see another one who is in the Public system in Melbourne on May 2. I live in Hobart and it has been problematic as we have only a couple of specialists, but not in scoliosis, hence lots of bouncing around between visits. Not to mention it is making me quite destitute financially.

I have private cover and it did not at all help me get a faster appointment to see the private specialist, it has been less time getting an appointment to see the public one!

So I can't offer much advice but I can empathise with you and the pain, it is all too familiar to me. You are not alone in waiting. The waiting is the worst, not knowing or getting an answer. And having to travel. But I expect it is normal to have to wait that long for a consultation, it does seem very common. I feel like I have been waiting my whole life!
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Old 20-03-2011, 01:33 AM
blackbetty blackbetty is offline
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Default Re: New to the forum

Thanks for the replies so far guys!
The main reason I was asking is because I have a few other problems and when I googled them it gave me a bit of a scare. I know I shouldn't google things but it's hard when your told you have to wait four months!. "Myelopathy" is the main one with me having alot of similar symptoms.
But the biggest thing that is worrying me is the newly diagnosed Kyphosis in my neck, I have never had this sort of pain before except for when I had sciatica. It feels similar to siatica except that the pain shoots up my neck from my shoulder and also down my arm now....
My scoliosis has always been managable as long as I didnt do the wrong thing. So hence why I am feeling a little anxious.
I really dont know what else to do except try to talk to people on here with similar problems.

Thanks again for listening...

Betty
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Old 20-03-2011, 09:26 AM
blackbetty blackbetty is offline
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Hi again...

Just figured out that I can add links to pics.... So if anyone interested please have a look and relay any opinions/advice... As mentioned in first post, only just re-diagnosed and been told to wait 4 months to see a specialist so I have no idea what degree it is at and am feeling a bit lost as to how severe/mild it is? Thankd again, Betty

http://i1235.photobucket.com/albums/...1-1800x600.jpg


http://i1235.photobucket.com/albums/...eck800x600.jpg
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Old 24-03-2011, 07:15 PM
Jen Jen is offline
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Default Re: New to the forum

Just a suggestion Betty, you can post a direct question to Dr. Scoliosis. Sometimes it takes a while to get an answer but at least it would be an expert answer.
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Old 03-04-2012, 10:37 AM
Bee_babe82 Bee_babe82 is offline
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Default Re: New to the forum

I am also new to this forum I am 29 and I just found out I have scoliosis and khyposis I've been looking on the Internet also and I'm scared and I havent seen a specialist yet either I also get pain in all of my back and my right arm has pain and goes numb so I know how you feel.
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