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  #1  
Old 22-10-2012, 11:20 PM
cookie cookie is offline
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Default hi - after some info/support

Hi All,
I have a 17month old girl who has a curved spine I not sure of the deg as I wasnt told just got told it was mild and it will be checked in the next 6 months.
It was brought to my attention she had an issue as she consistantly had hunched shoulder( also painful to touch) at one stage she wouldnt bring them down from her ears it took 6 weeks to actually see someone and the person I saw was useless and freaked me out, that is was something much more then i expected. I was assuming id have a few exercises to do and see how it went but instead it was a mess thinking my daughter had a more serious problem. so a couple of weeks later I saw an Osteo who said she had a curved spine.
My daughter seems to have a lot of difficulties when moving out of the sitting position and cannot sit up straight or straighten her legs infront when sitting. She has little balance some days and is constantly hurting herself. but is other wise happy
I would like to hear about others experiences???
did anythink help there child maintain /improve etc
thanks
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Old 23-10-2012, 08:29 AM
Christine Christine is online now
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Default Re: hi - after some info/support

Hi Cookie

I expect that you need to get expert help - not an osteo. Most of us on the forum don't have much regard for their opinions as they are not scoliosis specialists.

Hopefully someone else on the forum who is a parent and has had a similar situation will have some suggestions for you. I recommend you see your GP and get a referral to for a specialist...maybe a paediatrician / scoliosis specialist. If you live in a rural area you may need to travel, but please don't let it wait.

A gentle hug for your little one and for you too

Christine x
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Old 23-10-2012, 01:25 PM
Veronica Veronica is offline
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Default Re: hi - after some info/support

Hi Cookie,

I agree with Christine about getting it checked by a specialist. When my daughter was small I had concerns about her development & the best advice I received was to go to a pediatrician & have her checked out from head to toe. My friend said "get her checked, it'll put your mind at ease". I have to say that it did & although the outcome has left us with years (she's now 12) of specialist appointments & some surgery it was worth getting my initial concerns looked at, made me feel heaps better.

Good luck,
Veronica
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Old 23-10-2012, 08:59 PM
cookie cookie is offline
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Default Re: hi - after some info/support

hi Veronica/Christine it was so hard to get the appointment I got and it was a referal from my GP. services are pretty hard to get into and very booked up. I can always get an earlier appointment with the osteo if I am concern about her change in anyway. I might have to do a bit more research and check out if there is a different avenue although i tried it once with even worse advice and less of an outcome.
Im hoping my results with eventually reach my GP so I can find out the cobb measurement at the very least.
Have most people gone private or have they got good response from public.?
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Old 23-10-2012, 09:48 PM
cookie cookie is offline
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Default Re: hi - after some info/support

Hi again I should've said I'm in SA
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Old 23-10-2012, 10:56 PM
Rodverta Braefusion Rodverta Braefusion is offline
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Default Re: hi - after some info/support

Hi Cookie, welcome to the forum. Can I ask who you saw in Adelaide and who your referral is to. PM me. I know the clinic I went to has a really good Professor there. He has kept an eye on a friends daughter all through her teenage years.
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Old 25-10-2012, 08:46 AM
Veronica Veronica is offline
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Default Re: hi - after some info/support

Hi Cookie,

We are going through the public system in Melbourne. So far not too bad. Waited 3 months for our initial appointment at the scoliosis clinic (only as we were away for 9 weeks & we took the first one available upon our return), two weeks for our casting appointment, then 7 weeks for the fitting (was supposed to be 5 weeks but the dr was sick so th appointment was rescheduled). Fingers crossed as our fitting appointment is today. Our daughter has a 33 degree curve and we were advised that she needs a boston brace.

I hope that it all goes smoothly for you & that you don't have to wait too long.

Veronica
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Old 25-10-2012, 10:53 AM
Rodverta Braefusion Rodverta Braefusion is offline
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Default Re: hi - after some info/support

Hi Cookie, I have PM you.
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Old 26-10-2012, 12:08 AM
cookie cookie is offline
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Default Re: hi - after some info/support

Thanks for the Info Veronica I have a few leads now thanks RB I could investigate. I wish you and your daughter with the best of luck the brace
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Old 04-12-2012, 03:44 AM
Nat1972 Nat1972 is offline
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Default Re: hi - after some info/support

Hi Cookie. I'm from SA also. As a child I travelled with my family to Adelaide every 6 mths to see a specialist at the public clinic. I'm 39 now and living in Adelaide and I've been sent to several specialists who didn't help at all. I'm now waiting to hear from SA's only public spinal clinic. When I called I was told it could take up to 4 weeks for the docs there to see my referral and decide how urgent my situation is. Could then be another 2 years to get first appointment. I'm a single mum of 3 and living on disability as my scoliosis and related issues now prevent me from working or leading a normal life. It's sad we have to wait so long just to see a doc, let alone get treatment. If I could afford it I would go interstate and try there. I hope you have better luck than me
Cheers, Nat
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