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Old 09-06-2014, 11:05 PM
NaomiU NaomiU is offline
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Join Date: Jun 2014
Posts: 5
Default Re: Surgery booked January

Hi DeeElle,

You will probably be happy to know that I am a 19 year old female who has been Scoliosis free since 2007 and is now a fully functional, non-impaired and happy individual. I'm new to the forum and my goal is to help people the same way other people helped me.

Your daughter and I have something in common; we both had/are having surgery at the age of 12. I was also tall pre-surgery and grew another 6cms post-surgery!

I was diagnosed at 28 degrees in my thoracic spine when I was 7 years old after having chest x-rays for pneumonia. By the time I was 8, an old orthopaedic surgeon in WA who is now retired, opted for me to go into a brace. My parents declined his early/harsh intervention.

From here I frequently had appointments with a new (and renowned) orthopaedic surgeon in WA (cannot name surgeon due to site regulations). By the time I was 11 my curve had progressed to 50+ degrees in my thoracic spine and 20 degrees in my lumbar spine. I was put into a Boston brace almost immediately and wore this 22 hours a day which covered my whole torso from the middle of my chest to my bottom.

The brace was given to me in hope of slowing down my scoliosis before the surgery date, although this did not go as planned. Even though I was extremely disciplined in wearing my brace (sometimes for more than 22 hours/day) my curve progressed to 68 degrees in the thoracic spine and 35 in the lumbar spine with spinal rotation. I had my surgery in 2007 at 12 years of age and am now fused from T2-L1.

I do not regret surgery one bit. It was the best decision my parents ever made for me and if I was to make the choice myself, I would do the exact same! Your daughter will have her cute brave-face on but I know deep down what she is thinking as a 12 year old and I am more than willing to answer all the questions she has (and you guys as parents!) because I can guarantee that I (and my parents) had the same ones.

It was intended that I be fused to L3 although I was able to only be fused to L1 as a result of a strict pre-op regime that I am able to tell you about (I will cut this short because it's already quite long).

Today I am a fully functional university student studying physiotherapy (Yep! Scoliosis and the human body inspired me that much). I am happy to answer ANY questions you have regarding ANY part of your journey through scoliosis whether it be preparatory actions I did before surgery, hospital time and post-surgery.
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Old 16-06-2014, 10:24 PM
DeeElle DeeElle is offline
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Join Date: Dec 2013
Posts: 27
Default Re: Surgery booked January

Thank you so much Naomi. The forum members have been just wonderful.

I know Amelia will want to talk to people who have had the surgery. She had a little meltdown the other day and cried, saying she wanted it all to just go away.

Poor kid.

We reassured her that we'd be there to help her through it, and she seems better, although she has been complaining of leg pains and general fatigue. I don't know if fatigue is normal given she's prepubertal and if the leg pains are just growing pains?

Our next ortho appointment is in august and I must remember to ask then.

Thx again,

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