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  #1  
Old 28-08-2012, 11:55 AM
Joey Joey is offline
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Hi,
We have just recently found out that my 12yr old daughter has Scoliosis with a 45 degree curve. It's just nice to have this forum to be able to get information about scoliosis.
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  #2  
Old 29-08-2012, 09:41 PM
Rodverta Braefusion Rodverta Braefusion is offline
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Welcome Joey, I hope you find some comfort in this forum, knowing that you are not alone. The members on here are great! I take my hat off to the mums on here that travel this journey with their children. Best wishes.
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Old 29-08-2012, 11:19 PM
jane jane is offline
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Hi Joey,
Like Rodverta says the members on here are amazing! I have gained great amounts of comfort and advice from other Mums. I have also made an awesome friend who recently helped me through my daughter's spiinal fusion - she has been my guiding light and the best and funniest support person I could have wished for. My daughter is now 9 weeks post surgery. She is back at school fulltime, caught up on her schoolwork and hanging out to get back in a pool. She has no post surgery pain !
If your daughter has to have surgery there are awesome surgeons out there who can help you, even if it means you have to travel interstate like we did.
Best wishes,
Jane
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Old 04-09-2012, 07:06 PM
Joey Joey is offline
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Thanks, it is nice to have information & be able to speak to other people who have been or taking the same journey. Anyone that I personally know that have scoliosis or has had anything to do with people who have it are not able to tell me a great deal about it. I was a bit overwelmed & not wanting to say to much to my daughter until I had more information. Now we are just waiting for our appiontment with the specialist & that will give us more insight as to which path we will be taking but smiling all the way Cheers Joey
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Old 05-09-2012, 10:09 PM
jane jane is offline
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Hi again Joey,
Good luck with your appointment. Good on you for staying positive...it will help you and your daughter so much. Mind you, there will be times where you need chocolate (if you are like me) or retail therapy (if you are like my friend).
Best wishes, Jane
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  #6  
Old 09-09-2012, 08:10 AM
Veronica Veronica is offline
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Hi Joey,
We are new to this too, even though our 12 year old daughter's scoliosis was picked up when she was 2 by her physio. At the time it was very slight, only really developed in the last 6-12 months. As of 2 weeks ago she had a 33degree curve resulting in her being fitted for a Boston brace earlier this week.

I have been madly researching the net for info. Is there anyone on the forum who has a child with special needs & a boston brace? Our daughter has a moderate intellectual disability and so far all the info I have found while being helpful doesn't give me an indication of how we may need to deal with it as our daughter is non-verbal.


The hospital was helpful by looking at an alternative to plaster casting (not a chance our daughter would lay still for that), by taking lots of measurements for a computer program but otherwise offered very little info. I'm hoping when we pick up the brace in 5 weeks to be given a lot more info.

I hope that your specialist appointment goes well.

Veronica
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Old 11-09-2012, 12:52 PM
Joey Joey is offline
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Hi Veronica,
I took my daughter to the doctors for headaches & feeling sick a month ago & that is how we found out. Prior to that I just thought she was slouching because she is tall. I wish I had've been more aware of scoliosis, it may have picked it up earlier.
If you are on facebook (I do realise that facebook isn't for everyone), there is a closed group for parents of children who have scoliosis. As well as this forum, I have also found this group to be extremely supportive and have information that may be able to give you some insight. The group is private and nothing comes up on my home page. Which I like because I have only spoken to close friends about Sharni's scoliosis and Sharni is already self concious so I doen't want everybody coming up to her and asking her inapporpriate questions.
2 more months till our appointment and as always smiling.
Take care, Jo
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Old 13-09-2012, 12:14 PM
dizzy dizzy is offline
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Hi Joey,

In the last two weeks, we have been informed that our 6 year old daughter has scoliosis with a 20 degree curve. We are in the same holding pattern awaiting consultations and trying to research and absorb all of the information to make the best decision for her regarding treatment. L was complaining of back pain which I thought to be unusual for a child of her age which is how we discovered it.

We haven't spoken about it to anyone outside our family network and L is already worried about being teased at school.

It is comforting that there is a network of others - out there, who know what we are all going through.

Best wishes to you and your daughter on this journey.
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  #9  
Old 13-09-2012, 05:40 PM
katherineP katherineP is offline
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Hi there, my daughter whose nearly 10 yrs old has been complaining about back pain for a while . I had spinal fusion 2 and half yrs ago, so I'm always looking at her back checking and checking. I've taken her to my gp twice , physio and seen a physio at the children's hospital. All they say is to see how she goes also to wait till she gets her period. I've insisted on a X-ray but my gp is saying that's it's not necessary. I'm so so frustrated . Not sure what to do now. I was 14 yr when I found out I had scoliosis, . any advice!!!!!
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  #10  
Old 13-09-2012, 10:21 PM
Rodverta Braefusion Rodverta Braefusion is offline
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Hi Katherine, how are you? It's good to 'see' you and and then again maybe not..
If she were my daughter, I would insist on an xray. I don't know if you remember, but my GP took his jolly time too and kept telling me I had shin splints for 6 months!!!! I don't think it hurts to see exactly where she stands - its not like he/she is paying for the account. Take care and I hope you find some answers to her back pain. Hopefully it is something minor that can be taken care of easily and without surgery. Best wishes.
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