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Old 04-08-2015, 10:35 PM
jane jane is offline
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Default Changes post surgery

hi everyone, I haven't been on here for a while so I hope you are all ok and travelling well. my daughter had t4 -12 spinal fusion 3 years ago for a 63 degree right thoracic curve. the curve was reduced to about 21 degrees but now three years later it sits at about 28 degrees. what concerns me more than this is that her rib hump which went down by 6 degrees after surgery has now increased in size ( evident on X-ray too). her shoulder blade is now more prominent than it was post surgery too. our surgeon checked her out in March this year and was not overly concerned and said that nothing should keep changing now she should have stopped growing but I notice more prominence even since March and she now has fairly constant pain ( she did not have pain for 2 years post surgery ). has anyone else had any experiences like this? If anyone has I'd like to know if things stabilised or just kept getting worse. thanks

S
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Old 11-08-2015, 11:20 PM
Gilly Gilly is offline
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Default Re: Changes post surgery

Hi Jane,
That's quite concerning as I was under the impression that once the surgery was done there would be no more movement?
My 17 year old son is five months post op, he had a 76 degree curve which was corrected to just over 21 degrees. He is obviously still in the 'recovery' stage but I know that he is still worried and very concious about his rib hump, like you though our specialist has said there there is no need to worry about it.
Would be very interested to hear what others have to say?
Gilly
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Old 28-08-2015, 10:37 PM
Trace Trace is offline
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Default Re: Changes post surgery

Hi Jane. I haven't checked the site for ages either. Sorry to hear about Sophie's changes. Does she still have annual X-rays or did she go because of the pain? Has the surgeon said anything about it? Em had her last checkup in March when surgeon said she didn't have to go back again. I too worry a bit still as her neck is still not quite right and shoulders often uneven...Em says her rib feels like it's sticking out more too. She goes for remedial massages particularly when she lots of study to help with pain...sitting for long times makes it worse. Is your daughter still swimming? Does exercise help the pain? Hope you get some answers and she feels better soon
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Old 31-08-2015, 01:34 PM
Jan Jan is offline
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Default Re: Changes post surgery

Hi Trace,
sorry to hear of your concerns, I do hope things are on the improve again. My daughter is almost 1 year post op and travelling really well at the moment. Next year is year 12 though, so I'm pretty sure that will put it to the test! A lot of kids get back pain with increased study as there is so much sitting and looking down. It might be worth seeing if there are some adaptions that could be made to minimise staying in the one posture for long periods of time with study such as sometimes studying lying down or trying a standing work-station as an alternative to sitting?
Not sure about the shoulder blade being more prominent, it's good for them to occasionally stand in front of a mirror and adjust their weight bearing to make sure weight is even across both legs and shoulders and pelvis are level.
My understanding is that once the fusion is done, it is not likely to change the curve in that area again, but it could be that there is a curve below. My daughter's fusion went from T4 to L3, I did not want it to have to go so low, but the surgeon said that he needed to go that low to correct both the lumbar and thoracic curves.
She has a friend who developed some pain 2 years after surgery after having a pain free first 2 years post op, but she was doing year 12 when the pain started, and she had stopped a lot of her exercise.
Hope things are on the improve.
Cheers,
Jan
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