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Old 28-05-2012, 08:03 PM
maddie maddie is offline
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Default 21yr old having surgery in June -advice?

Hi guys!

I've been putting off surgery for as long as I can remember. And I've finally committed myself to a date, 12JUN12. I have a 46 degree curve in my spine, often get shoulder and back pain from sport.

I'm a very active person, I'm excited about the benefits that surgery will have in the long term... but petrified of the recovery.

I have a zillion questions, but to summarise -

1) what did you struggle with the most after surgery?

2) how long did it take you to get back to sport?

3) do you find the stiffness in your spine noticeable?

4) did you put on a lot of weight?

If anyone has any information they can shed on the situation, don't hesitate to message me!

Thanks

Maddie.
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Old 29-05-2012, 06:07 AM
rosie rosie is offline
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Default Re: 21yr old having surgery in June -advice?

1) what did you struggle with the most after surgery? I am 48 had surgery 4 months ago (t6 to sacrum).......didnt really struggle with anything

2) how long did it take you to get back to sport? Not sporty but I am active but I can tell you I definately cant run as if I try to I feel the pain in my backside as the fat wobbles, makes me really feel the big screws that go right out into my pelvis. Not a nice feeling.

3) do you find the stiffness in your spine noticeable? No stiffness really

4) did you put on a lot of weight? No weight gain

If anyone has any information they can shed on the situation, don't hesitate to message me! I am sure you will do fine as you are allot younder than I
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Old 29-05-2012, 08:10 AM
Christine Christine is offline
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Default Re: 21yr old having surgery in June -advice?

Hi Maddie

That is such good news! Very exciting times for you.

I am following Rosie's style of response here ... but I am older at almost 50 and had my surgery on June 6 last year.

1) what did you struggle with the most after surgery?
Gosh...so many things to say but mostly it was fatigue. And disappointment that my hump wasn't removed as much as I'd expected. So there is still quite a bit of discomfort for me in that area.

2) how long did it take you to get back to sport?
I am not sporty but was always a gym junkie and had to stop about 18 months before surgery as my back wouldn't let me do much. Three months after surgery I went into the pool but not for swimming. Just moving about in the water. I walk for a couple of hours each day either outside or on the treadmill / cardio machine. I can't run, it feels all funny and hurts a lot.

3) do you find the stiffness in your spine noticeable?
For several months after surgery, yes. But it does go away. I was fused T4-L1 so I am still quite flexible at the hips. Some things I can't do, but not too many restrictions. Twisting is a no-no.

4) did you put on a lot of weight?
No, I dropped about 4kg after surgery, and have put about 2kg back on now. So feel good. I came out 3cm taller too!

Your recovery will be so much quicker than mine. It seems like young people are back doing most things they did prior to surgery but do take care. Don't try to rush things.

Please do let us know how it all goes.

Christine x
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Old 29-05-2012, 02:35 PM
katherineP katherineP is offline
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Default Re: 21yr old having surgery in June -advice?

Hi Maddie.
Q1 .i struggled with low blood pressure, fatigue and pain due to a rib being removed.
Q2. I'm not sporty at all , but I do enjoy walking , very slow progress for me due to low blood pressure , so took me weeks before I could walk around much.
Q3. At first I felt really stiff , but now all is fantastic. I agree no twisting.
Q4. I lost about 4 kg , although I couldn't afford to .i have a small frame but gained about 3 inches in height . So nice and straight.
Everyone's recovery is different I didn't have much fun. Please ask for any info am happy to help. All the best . ( I had my surgery 2 yrs ago I was 39 then . I wish I had my surgery younger. I see my surgeon next week so hopefully no more X-rays and hospital visits.kathy
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Old 29-05-2012, 08:59 PM
maddie maddie is offline
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Default Re: 21yr old having surgery in June -advice?

OMIGOODNESS guys, this is all so helpful.

I have to think hard about how easy it would be to get back to running, I don't think I could live without being able to run!

I'm glad to hear everyone's different experiences, for so long I thought only children had scoliosis surgery, and that you are all healing well.

Thanks!

Maddie.
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Old 30-05-2012, 07:50 AM
Christine Christine is offline
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Default Re: 21yr old having surgery in June -advice?

As we all say, everyone is different.

My sister had her scoliosis operation in the early 80's when she was 13. She started working out at the gym when she was about 18?? and now, even though she is 45, she has been running about 30km a week, had done triathlons, does the city to casino run, point to pinnacle...that is up to the top of Mount Wellington!

She is super super healthy and active, looks great and is super lean even though she still has a hump. She makes me look like a sloth.

I don't know how she does it! But she always has and still works out and runs. I have an idea that you will be back running as soon as your back is fully healed.

Maybe I will be able to run when my back is fully fused. But I prefer not to as there are too many loose wobbly bits on this old body and sagging is something I don't want to encourage
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Old 30-05-2012, 05:46 PM
Kriddy81 Kriddy81 is offline
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Smile Re: 21yr old having surgery in June -advice?

Hey Maddie. First of all GOOD LUCK with it. I'm sure that you will be fine I had my surgery 17 years ago and I'm sure that things have changed/improved with the whole process

1) what did you struggle with the most after surgery? Honestly, My scars! I was allergic to the stitches that they used and my wounds popped open and got infected. I've got keiloid scarring now on my hip and lower back. Hated them then, now I kinda like them as they are part of my story! Like everyone else Fatigue and I wasn't alowed to bend at the waist for 3 months.

2) how long did it take you to get back to sport? 3 months for walking, 4 months for swimming. 12 months for dancing

3) do you find the stiffness in your spine noticeable? To begin with yes. It's an odd feeling. Now - nothing!! My right shoulder gets tender and tense every now and then but it's nothing that a massage doesn't fix

4) did you put on a lot of weight? Nope

You will have to let us know how you go with it all
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Old 14-06-2012, 07:45 AM
Christine Christine is offline
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Default Re: 21yr old having surgery in June -advice?

Hi Maddie

I have been thinking about you and hope you got through your surgery without any dramas. No doubt you are very relieved it is over and now you can focus on your recovery. Take it slowly!

Love to hear how you are going, and remember those first few weeks are the worst, then it just keeps getting better

Christine x
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Old 17-06-2012, 10:45 AM
Jen Jen is offline
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Default Re: 21yr old having surgery in June -advice?

Quote:
Originally Posted by maddie View Post
Hi guys!

I've been putting off surgery for as long as I can remember. And I've finally committed myself to a date, 12JUN12. I have a 46 degree curve in my spine, often get shoulder and back pain from sport.

I'm a very active person, I'm excited about the benefits that surgery will have in the long term... but petrified of the recovery.

I have a zillion questions, but to summarise -

1) what did you struggle with the most after surgery?

2) how long did it take you to get back to sport?

3) do you find the stiffness in your spine noticeable?

4) did you put on a lot of weight?

If anyone has any information they can shed on the situation, don't hesitate to message me!

Thanks

Maddie.
Hi Maddie, I'm a bit late as your surgery is over. I hope you're recovering well.

1) I had two hiccups, but they were minor and not long lasting. Firstly I was dizzy for several weeks which was not nice at the time, but once it went, it never came back. Then I became dependent on the drugs so had withdrawals when I came off them. Apart form that, I didn't have a lot of pain and I felt pretty good.

2) My surgeon said I can do anything except lift heavy weights and run. So I walk a lot (daily) and kayak whenever we get the opportunity. I walked from the day I came home from hospital.

3) Stiffness in the spine - I am less flexible, but have found new ways of doing things. We scolis can be very creative. There's nothing really I can't do but somethings are a stretch. Life simply goes on as normal and you eventually don't notice any differences because you eventually forget you have a fused spine (most of the time.)

4) I didn't lose or gain a gram. I gained almost 2 inches in height though, which made me look like I'd lost weight. Considering I went a couple of days without eating, I have no idea why I didn't lose weight!

As soon as you are able, let us know how you're going!
Cheers,
Jen
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