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Old 25-02-2014, 07:47 PM
Gsmum Gsmum is offline
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Default advice for mum of 7yr DD

My 7yr DD has just be diagnosed with scoliosis her xrays said
  • Scoliosis, convex to the right in the lower thoracic spine and to the left in the upper lumbar spine
  • The lower thoracic curve measures approx. 18 degrees and is centered on T8/9
  • The lumbar curve measures approx. 20 degrees and is centered on L2/3
  • The right acetabulum is approx. 4mm higher than the left.
  • The lateral alignment is normal.
Conclusion
  • Thoracolumbar scoliosis – pelvic tilt – leg length discrepancy
Our GP referred us to a pediatrician who ordered blood tests and an MRI. I believe the bloods came back normal, MRI said that
There is a scoliosis at the thoracolumbar junction region with convexity to the left side. No evidence of any obvious vertebral body abnormality was identified.
Conus is noted at L1 level. No obvious cord abnormality was identified.
Our pediatrician referred us to a pediatric orthopedic surgeon and also said that DD was not allowed to play any sport until she saw the ortho and that she was definitely going to be in a brace.
I know these are small curves but because of her age there is a chance the curves will get worse.
She has been having back pain for about 8 months now.
We have been given our surgical consult appointment which isn’t until July. However I discovered scoliosis clinics, and I can get in next week. I understand that these aren’t run by ortho surgeons but they said they can work out the cob degree, this is what we need isn’t it? Is it worth going to one of these clinics or waiting for the surgical consult? (we live 7 hours from all specialists and clinics) Does she really have to stop doing sport??? School is being very tough about this and she can’t even run on the oval?????
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Old 06-03-2014, 01:19 PM
cara cara is offline
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Default Re: advice for mum of 7yr DD

Oh poor thing - this must be hard being so far away from a specialist. I was diagnosed at 11 with a 38deg curve & wore a brace til I was 16 & surgery at 18 (I'm 29 now). I was always encouraged to do sport though as it strengthened the muscles. I had to quit gymnastics or anything that involved being super flexible but told to swim every chance I could & was big into netball & athletics. I'm obviously not a doctor but just from experience I can't see how sport could heavily impact her, especially short term until July. Considering early indications say she'll need a brace (and how far from a clinic you are), I would probably just wait for the specialist appointment. Just let her be a kid rather than thinking that she's different and limited. Having a brace is just like being the kid with the broken arm unless you make it a really big deal. Just my two cents though.
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Old 20-03-2014, 10:05 AM
Gsmum Gsmum is offline
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Smile Re: advice for mum of 7yr DD

Hi Cara,

Thank you for your suggestions and I think you are right. What difference does it make if she plays like normal and does sport except for like you said gymnastics. It is only another two months to wait.

Why did you have to quit sports that required you to be flexible?
My daughter loves physical culture which requires lots of stretching. I would have thought this would be good for her back? Is this not the case?

How many years were you in your brace for? Did it help your curve at all? I note you had surgery anyway at 18. Scary to think that you had to go through your teens in a brace only to have to have surgery anyway. I am still hopefully and probably naive enough to think that its one or the other. Mind you the more I read on this site the more unlikely that seems.
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