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  #1  
Old 06-11-2009, 07:11 PM
gabbysmum gabbysmum is offline
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Default Hi Everyone

I am new to this forum although I have been following an American forum similar to this one all year. It is wonderful to see an Australian one.
I am a mother of a 14 year old. We discovered her scoliosis on her 14th Birthday this year in Feb. Since then we have spoken to many people.
I havent stopped reading about scoliosis since February. We have looked at just about every alternative therapy. Then we made our decision with Gabbys help.
Gabby is scheduled to have her scoliosis surgery on the 1st of December in Brisbane.
I have a friend on this forum, Jen, who has been so helpful and supportive. We have the same surgeon. So she has helped me feel confident we have made the right choice.
I realise you cannot name surgeons. But I would love to shout to the world about this one. He is such a GENTLE MAN. He has been so compassionate and understanding. It made our decision alot easier.
We have definately gone through the five stages of grieving and are now at "acceptance' and are ready.
Forums are wonderful places and I cannot wait for this one to get into full gear.

Australia..... wake up! Why is there no longer testing in schools for scoliosis. This is a condition that if discovered early enough can be treated.
We didnt find Gabbys until it was too late.
If only there was more awareness out there.
Please post. We need to get this forum alive!!! It will help us Aussies being affected by scoliosis.
Regards
Donna.
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  #2  
Old 07-11-2009, 12:05 AM
Rodverta Braefusion Rodverta Braefusion is offline
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Hi Gabs Mum,
Welcome to the forum. I thought I recognised the name. I'm hoping this forum kicks off as well.
Good Luck with everything.
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  #3  
Old 07-11-2009, 12:10 PM
Scarlet-Sunset Scarlet-Sunset is offline
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Smile December for us too!

We only just discovered this site yesterday. My 16yr old daughter is having her surgery on 5th December in Brisbane too. My daughter and I were both shocked at the beginning of the year when the first specialist we saw said surgery was the only option. We went to another surgeon who did say the same thing, though had a more gentle, caring approach so have decided to go with him.
We are both very nervous about the big day, and have many worries - just like all the other patients and their parents. It is good to find a way to contact others in the same position. Not just for us mums, but for the girls so they can talk to people who are feeling just like they are.
Hope to talk again soon.
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  #4  
Old 07-11-2009, 02:22 PM
gabbysmum gabbysmum is offline
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Default

How is your daughter going? Is she prepared.
I guess she is coping similarly to mine. Good days and bad days hey!
We are starting to get orgainised now.
I put a couple of memory foam mattresses on layby at Target the other day because the people on the American forum commented on how wonderful they are.
I am looking into what to do about minimising constipation now.
I have read that taking "movicol" a few days before the op helps alot.
Aparently the constipation can be the worst.
Have you checked out the American forum. It is full of wonderful information. I am hoping that our forum will one day match up.
Keep in contact.
Regards
Donna.
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  #5  
Old 07-11-2009, 02:42 PM
Jen Jen is offline
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I agree, the constipation can be worse than the surgery if it goes on and on. The hospital gave me everything in their repertoire but nothing worked. A friend brought in some Nulax (from the chemist) and it worked within three hours. This was Day 9 for me.
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  #6  
Old 11-11-2009, 10:41 AM
Scarlet-Sunset Scarlet-Sunset is offline
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Default Lauren's surgery

HI again,
I am glad you mentioned about the memory foam from Target...I am going to have a look at them today. Hadn't really thought about L's bed, but I guess when they come home from hospital, their bed needs to be super comfy. L has had the same bed for many years now, so probably not fantastic.
Yes we are both having good and bad days. It all seems unbelievable that she has to have such a big operation. I fear the time of the surgery...the waiting around, wondering how it is going. I noticed on the American site, that you have the same surgeon as us (Gabby) so we might even get to meet. (L's on the Sat)
The doctor had mentioned about the constipation. Sounds like we need to be armed with all that we can to alleviate the problem.
Great to have this contact point!

Bye for now.
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  #7  
Old 12-11-2009, 07:06 AM
gabbysmum gabbysmum is offline
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Hi,
I was wondering about that. (If we had the same surgeon.) Another mother that I have spoken to that had the same surgeon operate on her son said that the staff at the hospital have an extremely high amount of respect for him because of is bedside manner and of course his skill. I think we have both made the best decision with choosing him.
Perhaps if Lauren is up to it the two girls could swap contacts and have a chat.
I asked Gabby how she feels about talking to another girl that is having the operation a few days after her and she thought it would be good.
As long as Lauren feels comfortable.
We are admitting Gabby on the Monday and she is first up on the Tuesday.
I am so far behind being prepared. I really need to write a list and start crossing things off. Jen sent me a wonderful list to use as a guide which will help alot.
Donna
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  #8  
Old 13-11-2009, 09:50 AM
Alexandrasmum Alexandrasmum is offline
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Hi all,
I've just been made aware of this forum and have just read some of the posts. My 13 year old daughter is booked in for surgery on the 7th Dec in
Brisbane. We too only discovered her problem around 6 months ago and were shocked and devastated by this. My daughter is resigned to the fact that surgery is the only option for her and she's keen to have it over and done with. The hospital staff have been wonderful and the doctors fabulous. Am keen to get any tips on after care from anyone. I can't believe a simple test taken in years 5-7 at schools isn't implemented thus saving the heartache for all included ! Looking forward to sharing thoughts with all of you. Jo
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  #9  
Old 13-11-2009, 07:49 PM
gabbysmum gabbysmum is offline
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Hi Alexandras Mum,
Well it looks like we have 3 December surgeries, all in Brisbane.
Alexandras, Laurens and Gabbys.
I would love to be able to give you heaps of information in preparation, but I am flying blind here.
I guess if you ask a question on the forum I know of at least 3 members that may be able to help.
You are right in saying that there should be scoliosis testing in schools.
I want to video Gabbys operation and send it to Anna Bligh. Perhaps she will consider it then.
I certainly want to get on the bandwagon about this and I probably will eventually, but right now my whole focus is on getting Gabby through this with the least amount of pain and mental anguish as possible.
Stay strong and keep in contact. Talking to people affected by scoliosis will help so much. That is what I have found anyway.
Hope to hear from you again
Regards
Donna.
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  #10  
Old 14-11-2009, 10:12 AM
Rodverta Braefusion Rodverta Braefusion is offline
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Welcome to the forum Alexandras mum.
To all the mums, if you have any questions in regards to surgery, pre-op, post-op, whatever it may be, just ask. I had surgery on June 1st, 2009,
T11-S1 posterior and anterior fusions at L4/5-L5/S1. I'm no expert, but i can only offer you guidance based on my experience. As a parent, i know all too well about helping your children and so, if i can help you in any way, please ask.
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