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  #1  
Old 30-03-2012, 10:32 PM
katherineP katherineP is offline
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Unhappy Young daughter and pain

Hi all , I've been on this forum for a while and I had my surgery 2 yrs ago. My concern now is my nearly 10 yr old daughter Caitlin . I have noticed that she is getting lots of back and neck pain. Ive taken her to the childrens hospital but all they said is that they will monitor her and they also gave her exercises that she doesn't always do. My gp said she's too young for an X-ray . I'm now feeling really frustrated and afraid. Do I go back to my gp and insist on an X-ray . I'm constantly checking her back but I don't notice a change . What do you think..thanks all Kathy
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Old 31-03-2012, 08:42 AM
rosie rosie is offline
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Default Re: Young daughter and pain

Hi
Personally it is good to have a record of her spine to measure any changes. Yes It isnt good to have to much exposure to xray but I think I would be asking for one. I am in the same boat however the daughter I am worried about is 21. My mother and I became severe in later life. Mum hasnt had surgery and really needs it except she is 70 and has other health problems. I am nearly 8 weeks out (47 yrs old) and I didnt have a choice as in the past 2 years my curve speed up dramatically. I was diagnosised at about 15 but lost the xrays unfortuately. I always kept other xrays and this was great to monitor the curve over the years.
Get a second opionion cant hurt hey
Rosie
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Old 12-10-2013, 07:18 PM
katherineP katherineP is offline
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Smile Re: Young daughter and pain

Hi , it's been a while but I eventually got a second opinion , which turned out to be a complete disaster. Caitlin is now 11 yrs old , and still having back pain . After about 2 days of her telling me her back was hurting I decided to see another doctor . She was horrible she said to " leave Caitlin be a child" and that I was being neurotic. The most idiotic thing she said was " and if she does have scoliosis what then " omg !!She was not understanding or willing to listen she made me feel like I was torturing my child . She was an absolute --------. She checked Caitlin's back quickly , mind you she didn't even have her touch her toes then check out her spine. So i was told to continue monitoring her .She didn't take into consideration my own experience with scoliosis . I left frustrated pissed and confused. What do you guys think.??? ( she also refused to give Caitlin an X-ray ) thanks kathy
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Old 14-10-2013, 02:12 AM
jane jane is offline
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Default Re: Young daughter and pain

I feel so sorry for you. I was once made to feel like a stupid new mother when my son was just 4 weeks old. He started projectile vomiting out of the blue. I was sent home 3 times and told to wait because no signs (not even 3 huge projectile vomits) were definitive! In the end I insisted they admit him to hospital which they did. Even then they made me wait overnight despite the fact that he had not kept a single feed down and had stopped urinating! I pleaded with the nurse to have the doctor examine him again and finally lo and behold we were sent to the children's hospital 3 hours drive away where fortunately one projectile vomit was enough for them to screen him for pyloric stenosis! He had surgery 24 hours later. Now I don,t tAke no for an answer until I am satisfied that all possibilities have been explored whenever dealing with any medical issues with my children. I would try very hard to get the advice of a scoliosis professional (surgeon) and see if he/she can advise you of a GP that understands the importance of diagnosing scoliosis as soon as possible. as for being too young for an xray....they would X-ray if a broken bone was suspected and plenty of .11 year olds have had those! Your instincts as a mother are reasonable. We know our children so well! Hope you have some luck. My daughter is 17 months post fusion and I know that when/if she has children I will be one grandmother watching their spines very closely.
Take care
Jane
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Old 15-10-2013, 10:51 PM
mlc65 mlc65 is offline
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Default Re: Young daughter and pain

Hi my now 12 year old complained of pains in her knees and hips. We got referred to a paediatrician who looked at her hips then did a scoliosis check. Turns out the hip pain was just a reaction to her spine curving. We had no idea. My daughter was out into her brace last week and already feels better. Go with your gut instinct, if she has scoliosis treatment now could save massive pain in late life. Always go with how you feel and what your child tells you. I put my daughter off thinking it was growing pains till she instated. It is her body and she knows it better than anyone. Go and see an orthopaedic paediatrician if you can. We are in WA and have a great one if that is any help?
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Old 22-12-2013, 01:17 PM
macky macky is offline
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Default Re: Young daughter and pain

Follow your instinct as a mum, our 6th sense with our children can quite often be correct. I would insist of seeing a scoliosis specialist. I do not know where you live but there is a list of scoliosis specialists on the net, even if to just put your mind at rest, I do think it to be a good thing.

I can remember i just had a pain in my right side which we thought was a rumbling appendix which turned out to be scoliosis. she is a lucky girl to have a mum keeping such a close eye on her.

All the best
macky.
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  #7  
Old 07-09-2015, 08:14 PM
katherineP katherineP is offline
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Default Re: Young daughter and pain

Hi all, well it's been a while and just wanted to give you guys can update . This year's been especially busy with Caitlin starting high school and lots of other changes. The last few months she's been complaining about her persistent pain so back to the doctor and demanded an xray . Then back to get her results , doctor tells me she has a curve to her right plus the right blade protrudes. I burst into tears I know not a great thing to do but I know what it's like to live with scoliosis .
He then tells me don't worry we don't need to do anything she'll be ok I nearly feel off my chair . I asked for a referral and going to (name of hospital removed by admin). Caitlin was ok with this news taking all in her stride. I'll keep you guys posted . Thanks all
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  #8  
Old 22-09-2015, 09:51 AM
Leigh Leigh is offline
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Default Re: Young daughter and pain

Just follow your gut instincts and stick to your guns. To say you don't need to do anything is rather worrying to say the least. I think you have things under control (a mothers instinct is usually right), wish you all the best and hope things go well for your daughter. As we all know only too well time is of the essence with scoliosis, the quicker you start treatment while they are still growing the best chance you have of avoiding surgery if you are lucky.
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