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Old 24-08-2011, 07:19 AM
sueham sueham is offline
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Default Jake's surgery

Hi all, Jake's surgery all went well, he went into theatre at 2pm and I was expecting it to take 3 hours, so by 6.30 when I hadn't heard anything I was going a little crazy! He'll be in Critical Care for a while longer and still very sleepy, and he's obviously got a very tough few days ahead, but all is good. Yesterday I went from the elation and relief of it all being over to crying like a baby! Will keep you posted.

Sue
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Old 24-08-2011, 01:12 PM
Christine Christine is offline
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Default Re: Jake's surgery

Hi Sue

Wonderful to hear the scary part is over! My Tom was kept in the dark for over four hours post-surgery and he was going very crazy as he knew nothing also. He was a real mess. Make sure you get some rest, especially when Jake is sleeping. You will need your energy more than ever now...

Big love to Jake. What a champion.

Christine x
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Old 24-08-2011, 09:42 PM
Rach's mum Rach's mum is offline
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Default Re: Jake's surgery

Hi Sue,

Glad to hear that Jake's surgery went well. Wishing you all the best for the days of recovery ahead.

xx Sonia
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Old 30-08-2011, 09:12 AM
sueham sueham is offline
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Default Re: Jake's surgery

Hi all
I'll try and give a brief summary of our past week. Last Tuesday Jake had anterior spinal fusion surgery and is now fused T11-L2. His surgery lasted 4.5 hours, with all going to plan. He stayed in the Critical Care Unit until they could remove his chest drain, which was Thursday lunch time. They had him stand up and take a few steps on day 1 which went okay, a bit dizzy and nauseous. His pain was managed well the whole time, he never complained of severe pain, and hasn't since. Day 2 he was transferred to the ward and it was a relief to have all the tubes, catheter etc out, this was however his down day, he barely said a word, and getting up was even worse that day, which apparently is quite common, I knew things were bad when he let me help him to the toilet and didnít even care! Day 3 he showered and dressed and was feeling heaps better. Went for a long walk through the hospital and had a few visitors. Day 4 even better, had friends visit, got a bit carried away showing off though and paid the price that night . Day 5 (Sunday) he came home, the 30 minute drive was a bit tough but not too bad. His appetite is starting to return, he lost 4kgs and gained 2cm so at 6ft and only weighing 52kgs we need to feed him up on some donuts I think! Painís not too bad, heís only taking 2 Endone a day at the moment. Heís been home 2 days and heís bored already, itís going to be a long 6 weeks for him, thank goodness for technology though, nothing better to do than play on the xbox, ipod etc.
All in all the whole experience has been amazing, everyone's right when they say the waiting is the worst, but itís been better than we could ever have imaged and weíre all so glad the worst part is over. His spine looks good, he still looks uneven when he stands but apparently the muscular stuff takes a while to adjust to his straight spine. The surgeon is amazing and the hospital was fantastic, itís a shame I canít name them cause I feel so grateful to them.
Sue
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Old 30-08-2011, 08:33 PM
Kay Kay is offline
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Default Re: Jake's surgery

Hello Sue,
I am new to posting messages, but have been reading yours and others postings over this year. My daughter is due to have a anterior spinal fusion in November. We live in Adelaide and I have a sneaky suspicion that we have the same Specialist. It is great to read that Jake is doing so well after surgery, and is very encouraging to us. My daughter has a lumbar curve of 48 and a thoracic curve of 42. She is now 13 and we have been watching her spinal curves progress since she was 11.
All the best, "Kay"
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Old 31-08-2011, 08:35 AM
sueham sueham is offline
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Default Re: Jake's surgery

Hi Kay
Yes, our surgeon mentioned to us in hospital about a girl he'd just seen who was due to have the same surgery in November, mentioned he may organise a meeting, as he does with his spinal patients. I know how you must be feeling, but she is in good hands with him.
Take care, Sue
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  #7  
Old 31-08-2011, 03:01 PM
Angela Angela is offline
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Default Re: Jake's surgery

Hi Sue,
So glad to hear that everything went well with Jake's surgery. It is good that the worst is over and he is recovering well. Good to hear that he is not in too much pain. How are you? Look after yourself as well. Keep us posted how he is going.

Angela
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  #8  
Old 01-09-2011, 01:10 AM
Rodverta Braefusion Rodverta Braefusion is offline
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Default Re: Jake's surgery

Sueham,
Great to hear that Jake is on the mend. Children are resilient. The muscles do have to retrain into their new position, thats where all the walking to keep them active comes in handy!
Best wishes, I am from Adelaide as well. My surgeon was also fantastic and the hospital and staff were the best!
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Old 16-09-2011, 01:06 PM
Kay Kay is offline
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Default Re: Jake's surgery

Hi Sue,

Have been thinking about Jake and your family. Hope he is mending quickly and not getting too bored at home!

Cheers, Kay.
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  #10  
Old 16-09-2011, 02:27 PM
sueham sueham is offline
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Default Re: Jake's surgery

Hi Kay
Jake is doing really well, he's off all pain relief and walking heaps, went for a 4k walk down the beach the other day with no problems. He can't sit on hard chairs for too long though, so he's not ready to go back to school yet, we will leave that until next term. Had a follow up appt Monday and all is good, they took the plaster off and his scar looks great, very neat. We don't know the improvement officially yet, he has further xrays for that at the end of October. They keep an eye on the top curve now, hopefully it does what it's supposed to! He loves his xray that shows the rod & screws, I'm trying to organise an image of it as he wants to get it onto Facebook ha ha.
As for getting bored, I think he's actually getting used to this life of leisure, so I'm going to organise some schoolwork for him next week!
Feel free to contact me by PM if you want to ask about anything, or want to see 'before & after' photos.
Hope you and your daughter are doing okay.
Sue
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