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  #61  
Old 19-07-2011, 07:26 PM
Dom's mum Dom's mum is offline
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Default Re: Countdown to surgery

Hi All,
Another update. Had a great spinal checkup in the holidays, alignment is great and as there are definite signs of fusion 8 months post surgery Dom is allowed back to sport (no contact of course). Couldn't wipe the silly grins off our faces when we got home from Sydney and he went out and threw a ball around with his Dad and brother. The simple things in life! Not quite so happy that he is finally back to PE at school and it is dancing this term! You can't win them all.
Also saw the cardio thoracic surgeon in June and his information was much better. Surgery is booked for 1st December (in Sydney once again). he will have a "Nuss" procedure and because of the severity he will have two bars inserted in his chest. This surgery will be one year and two days since his spinal surgery. I am just in awe of his maturity and bravery with this decision. Must say that he was greatly reassured by the promise of very good pain management!!!
We will make the most of the days before then and he is starting back at tennis this week.
Our other sons curvature has been checked and it is only 23 degrees at this stage but in exactly the same spot as Dom's. Specialist suggests we see him in a years time at Dom's next checkup. We are still awaiting genetics appointment.
Annette
PS Dom had one of those new whole body x-rays (embarassing for him as they show the "boy bits) but how amazing are they? Would have been great before his surgery to show a real picture of the scoliosis
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  #62  
Old 20-07-2011, 09:39 AM
Christine Christine is offline
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Default Re: Countdown to surgery

Hi Annette

You have your hands super full with your boys and I love reading and feeling your optimism and love for them.It is really beautiful. And I bet they are beautiful too.

My son dropped in for a visit last night. He is now 21, living life independently and when I see him I still burst with the warm fuzzies. Ever since he was born kept an eye on his back. He has been fortunate to have a strong and straight body, but he was a bit worried when he was young that he would start twisting.

The x-rays are fabulous images. I made a thank you card to send out using three of mine plus one of my scar. It really freaks people out when they see me or come for a visit and ask what I had the op for and I show them! And yes they do show my boobs in a funny way, which was pointed out by a male friend. Typical! Maybe Dom could do something creative to keep as a document of his amazing feats...if you could get a jpeg of the x-ray and take it to a photo lab and make a poster for his wall...I made mine into a little folding accordion card. Wallet size. Happy to do something like that similar for him if you do have a jpeg of his x-ray. It would give me something to do while stuck at home. Being an artist I have all of the IT gadgetry and nice printers and papers.

cx
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  #63  
Old 26-07-2011, 08:47 PM
Dom's mum Dom's mum is offline
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Default Re: Countdown to surgery

Thanks Christine for your kind words. Glad I sound optimistic to someone, it is a challenge at times! But they are great and we appreciate them, know a lot worse could happen but you just want their lives to be good. Glad you have a beautiful 21 year old, with a straight spine- imagine what we will be like with grandkids one day?!
Good to have followed your progress and see how well you have done. How clever with your photos and x-rays, good to celebrate your journey. Thanks for your kind offer, I am computer illiterate will have to ask my boys about it! We had a huge family gathering on the weekend for Dad's 90th and his cousins were most impressed with his scar. I think of it like a bravery award.
Dom is off to tennis tomorrow and the big news the other day was that he kicked a soccer ball and threw a basketball around at school. Now if I could just get the study happening!
Keep up your good progress
Annette
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  #64  
Old 28-07-2011, 01:26 PM
ferris ferris is offline
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Default Re: Countdown to surgery

Can you pm the details of the doctor who is correcting the PE. One of my sons also has this and I consider it to be severe. Will be watching this space to see how it all goes for him. And at what age do they prefer to do this surgery?
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  #65  
Old 24-09-2011, 09:08 PM
Dom's mum Dom's mum is offline
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Default Re: Countdown to surgery

Hi Ferris,
Sorry have been "AWOL" for a while have finally sent you a PM with those surgeon's details.
Cheers
Annette
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  #66  
Old 24-09-2011, 09:45 PM
Dom's mum Dom's mum is offline
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Default Re: Countdown to surgery

Hi All,
A quick update. Dom is doing great and loving being back at sport (even the dancing as he realized you do that with girls!). His friends are still being great - his dance partner tripped him over the other day and the whole class stopped in horror and the poor girl cried. How amazing that they still care. I cried his first day back at tennis (and took photos, what an embarassing mother) it was just so good to see him doing something he so enjoyed pre op, both physically and socially. He had to give a talk in english the other week about something you feel strongly about so he chose "taking things for granted, making the most of life", I think he got a few sympathy marks there!
I think he is still a bit run down and hasn't put any weight back on so I started giving him iron tablets until he discovered they were my "Womens' Mix". Totally horrified, I think he thought he was going to grow breasts! He now has his own tablets and we have increased the number of BBQs etc. I suggested a blood test to check levels, but once again the boy who is bravely signing up for surgery again turned white and nearly fainted at the thought.
So we head to Sydney again this Wednesday 28th to see the cardio thoracic surgeon for and ECG and to have his chest measured and the bars bent. This will be a bit confrontational as he will see it all this time. He isn't talking much, I always find that two hour car drive home a good time to catch up. All should go ahead then on the1st December.
His older brother has had his genetics appointment and it was inconclusive. Next step is hip x-rays and an MRI. The consensus seems to be that they have a "connective tissue disorder, as yet unnamed". Bit of a curse but on the positive side at least we know to keep getting them checked and they can stay as healthy as possible. Will be working until I am 80 to keep that private health insurance! Geneticist was pleased to know we are following up with his scoliosis!?
All good. Keeping up with activities until the surgery and Dom will have a week after his school certificate and graduation to enjoy just doing... Being a boy he is pleased that at least after this surgery he will set off airport alarms!
Cheers
Annette

Last edited by Dom's mum; 24-09-2011 at 09:47 PM. Reason: Wrong date
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  #67  
Old 02-10-2011, 01:29 PM
MySon MySon is offline
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Default Re: Countdown to surgery

Good luck Annette and Dom.
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  #68  
Old 23-11-2011, 09:59 PM
Dom's mum Dom's mum is offline
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Default Re: Countdown to surgery

One week today and we will be in Sydney. 30th November for preop ECG, x-rays etc. Chest surgery 1st December. Feel like we are in the movie "Ground Hog Day" as this is exactly where we were one year ago for the spinal surgery, life certainly has that unreal feel to it. His older brother has a sore throat so I have "quarantined" him, just imagine if it got postponed like last time due to high temperatures!
Dom has just had his Yr10 graduation, so handsome in his suit and his attitude is wonderful but he is getting scared. We just focus on the fact that he got through the spinal surgery so well, he knows he can do it.
I guess this isn't really relevant to the scoliosis sight but it feels like home.
Thanks
Annette
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  #69  
Old 24-11-2011, 07:54 AM
Christine Christine is offline
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Default Re: Countdown to surgery

Hello Annette

Time sure does fly. Dom has had a scary but wonderful year, and what a great way to round it up by finishing Year 10 in such fine style! I bet you had a few tears when he was all dressed up in his suit. My son has not worn a suit since he was fourteen. Yes, really. I have tears thinking about that as I probably will never see him wear one

Being more scared about a second surgery is probably normal. I may be having my hump fixed next year I am worrying about it quite a lot, whereas I never worried at all about my ten vertebra being fused at all!

Many wishes from down here to Dom and your family. Looking forward to hearing of his progress.

Christine x
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  #70  
Old 26-11-2011, 09:27 PM
Dom's mum Dom's mum is offline
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Default Re: Countdown to surgery

Hi Christine,
Thanks for your encouragement, we are getting into that frantic time pre surgery. Been there, done that and know it can be okay but you still can't help that build up! Got a couple of nice outings planned for him Monday, Tuesday before we head to Sydney Wednesday. Will be good for him.
Yes, I did have a few tears seeing him all dressed up, just so proud of him. Your son not in a suit since he was 14, wow. To each their own, they find their own place in life don't they? Think Dom is still so high from his night out he would live in a suit at the moment.
Sorry to hear you are still having pain. Keep going with your positive attitude.
Annette x
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