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Old 22-05-2011, 05:53 PM
louiseb louiseb is offline
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Unhappy Surgery for my 2 yr old

Hi all,
I have just found out that my 2 year old will need surgery soon.
We were hoping to hold it off with a brace as long as possible, but her curve is continuing to worsen even in the brace.
All I've been told is that it will be sometime in the near future, prob in the next 9 months.
I have so many questions!!! Do you get more information closer to the date?
Has anyone else had experience with surgery with this age group?
Louiseb
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Old 23-05-2011, 07:07 AM
Jen Jen is offline
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Location: Sunshine Coast, Queensland,
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Default Re: Surgery for my 2 yr old

Hi Louise. I'm so sorry to hear about your 2 y.o. I can't tell you much about the surgery, but what many of us do, is prior to a consult., write down all the questions that come into your mind, give it to him and let him work down the list. Ask him to make notes under each question (leave him a line or two of space.) Some make two copies and make notes for themselves as the surgeon is dealing with each question. Take someone along with you for a second pair of ears and to help remember details, is my suggestion. Are you seeing a specialist scoliosis surgeon? Wishing you and your child the very best.
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Old 28-05-2011, 09:30 PM
tracy tracy is offline
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Default Re: Surgery for my 2 yr old

Hi Louise,

Sorry to hear the brace isnt working for your little one? So would it be growing rods, they are looking to use? Is the curve lumber or thorasic? If its any help, our daughter had the growing rods at age 9 last October and she is doing everything a girl her age can do. Netball swimming. People have said if she didnt have the scars to prove it, they would think we were making it up? Kids are just amazing! I am happy for you to Private Message me. Keep your chin up,as your daughter will amaze you! Ask lots of questions, and be confident in your Surgeon, if not, get a second opinion. All the very best.

Cheers
Tracy
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Old 27-06-2011, 09:14 AM
louiseb louiseb is offline
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Default Re: Surgery for my 2 yr old

Thanks Tracey and Jen,
Yes, it's growing rods they're planning.
Her curve started thorocolumbar, but it's moving more towards lumbar.
We got the opportunity to present her case to a conference of specialists a couple of weeks ago.
On their advice, we are now going to try a new style of brace as one last attempt to control the curve.
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Old 07-07-2011, 08:35 PM
tracy tracy is offline
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Default Re: Surgery for my 2 yr old

Hi louise,

Sorry it took so long to reply, things just get so busy! Well, thats great news about the new brace, I pray it works for your little one. Theres a lot of surgeries involved with growing rods (about 9 for us, so that means a lot for your little one) I guess holding that dreaded curve off, as long as possible, is the main thing? You obviously are getting the best advice and doing a great job!! Good luck with it Louise. If theres any questions you have feel free to ask.

Tracy
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