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  #11  
Old 21-06-2013, 07:09 PM
Pegacorn's Mum Pegacorn's Mum is offline
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Default Re: What can a parent expect?

Hi MAB, we off to surgery in 6 days...even saying it makes me feels sick. However, we have started a bit of a diary, and will definitely post here to let you know how we fare. We are in Melbourne, and hear our specialist is great, so here's hoping all goes well. Good luck with August, by then my daughter should be well on the way to recovery. Stay tuned!
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  #12  
Old 23-06-2013, 03:22 PM
Kiwicurves Kiwicurves is offline
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Default Re: What can a parent expect?

My 13 yr old had surgery (L2 - T4) 3 months ago and looking at her now you would hardly know. The week immediately post surgery at the hospital was our worst week. I was grateful to be allowed to stay in her room with her and was there 24/7. Having a friend come and spend time with her for an hour or so each day gave us both a bit of a break. She struggled to eat anything the hospital brought her, so I'd suggest taking in some favourite snacks to try to encourage eating. Sushi was gratefully received as was small fruit smoothie type drinks. Dried fruits were also great to get her 'system' working again.

Once home she recovered quickly and amazingly went back to school 3 weeks post surgery for half days. She was back at school full time at 6 weeks and is now swim training twice a week. She isn't doing other sports or PE yet, but hopes to participate fully next term. No problems walking 15 mins or more from the school bus.

Each child is different and recovers at different speeds, so dont expect too much. I can remember feeling so disappointed that my daughter wasn't able to walk on Day 3 as they had scheduled, nor did we go home on day 6 as planned ... but her progress ever since has been incredible.

Best of luck.
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  #13  
Old 23-06-2013, 08:42 PM
MAB MAB is offline
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Default Re: What can a parent expect?

Hi Pegacorn's Mum - I hope all goes well this week. I'll look forward to reading your updates. I'm managing to put the date of surgery to the back of my mind at the moment - I can imagine that it will creep up on us though, and just like you, the week before my head will be spinning and I will most likely be a basket case!

Hi Kiwicurves - thank you for all your words of wisdom. It helps so much to hear about the experiences of others. It's wonderful to hear how quickly your daughter has recovered from the operation. I suspect my son won't be so keen to return to school so quickly though - he's looking forward to some time off and as a non-sports lover the fact he has a reason to opt out of school sport is another factor he's looking forward to!! We're lucky that the hospital is only 30 mins from home, so my husband and I will both be around the first week in hospital to share the load there.

Thanks
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  #14  
Old 24-06-2013, 08:39 PM
Traveller Traveller is offline
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Smile Re: What can a parent expect?

Your story sounds similar to ours-we have 13 yr old girl also very positive almost relaxed about whole thing- she came home sat after having surgery on the tues- very lucky everything went as well as it possibly could- convinced her positive attitude helped enormously.also don't beat yourself up about not noticing it earlier. After our 1st meeting with surgeon I realised that if we had seen it 18 months earlier it would have been the same outcome but with an extra 18 months of worrying about it.she has fusion from T4-L2.i
I was very concerned that I would find it so hard to manage my own emotion on the day of surgery that I would upset my daughter but can honestly say although a very tough day no doubt about it- the anticipation was more harrowing than the reality.the 4 hours of surgery was tough but I went into theatre with her until she fell asleep(another thing I felt unprepared for) and it was great for me- the surgeon , anaesthetist spinal guy and theatre nurses were so calm spoke so beautifully to her laughed with me at her crazy pre-med talk that I walked out feeling calm, confident and had certainly lost the brittle edge to my anxiety.i wish you all the positive vibes possible, it's a big op but our kids are not unwell, they have strong,healthy young bodies and it clearly has a massive influence on their physical resilience- keep your chin up and hoping your son has a speedy recovery when his turn comes.
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  #15  
Old 24-06-2013, 08:56 PM
Traveller Traveller is offline
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Default Re: What can a parent expect?

Forgot to mention our daughter has panadol and endone at home.has managed well just with panadol during the day and 1 endone at night before bed. She's slept right through first 2 nights so seems to be going well. Her need for panadol is stretching out each day which amazes me considering the extent of the surgery. Didn't eat much in hospital but appetite picking up now. You will get great advice from your medical team I'm sure.as the saying goes "keep calm and carry on".
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  #16  
Old 05-07-2013, 10:19 PM
MAB MAB is offline
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Default Re: What can a parent expect?

Hi Traveller your daughter sounds like she is making a very quick recovery - fantastic news! You must be so relieved to see her making such quick progress. My son is also having a T4 - L2 fusion so it's wonderful to hear your positive news. When the scoliosis was first picked up he wasn't in any pain but he's now starting to feel discomfort on a daily basis. I know the date will be here before long but at the same time it seems to be forever away! Thank you so much for your encouraging words and here's to your daughter continuing her terrific progress!
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  #17  
Old 10-07-2013, 09:25 PM
Pegacorn's Mum Pegacorn's Mum is offline
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Smile Re: What can a parent expect?

Hello all, we are now at day 12 post-op, really hard to believe the days have slipped past so quickly. My daughter had t4-l1 fusion, and is doing really well now. She had difficulty with vomiting when transitioning from intravenous to oral meds, which unfortunately happened the day we got home, so that was a bit stressful. Not much appetite at that time, but now it is all good, appetite much better, she is moving really well, and no longer needing assistant over night to turn. We are now at the stage of weaning off the heavy drugs, and she is taking charge of that herself, willing to have a bit of pain, and less meds, and moving more each day. Best wishes for those who are still waiting...it will be worth it!
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  #18  
Old 14-07-2013, 06:21 PM
MAB MAB is offline
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Default Re: What can a parent expect?

That's great news Pegacorn's Mum! It's amazing to hear how quickly all the kids seem to recover from such major surgery. We still have 5 weeks to wait at this end (not that I'm counting!). Thanks for sharing your daughter's progress with us.
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  #19  
Old 02-08-2013, 11:38 PM
Pegacorn's Mum Pegacorn's Mum is offline
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Default Re: What can a parent expect?

Hi MAB,
My daughter is now 4 weeks post op, and it is hard to believe how far she has come! She left hospital at 5 days, which may have been a day too soon, as she threw up all day the next day, add I had to ring the hospital for some reassurance..but that aside, she has made steady progress. She went back to school for 4 half days this past week, and is having a full day This coming week, to attend an excursion. She doesn't have a brace, which I am in two minds about, but seems to be managing really well. My biggest fear is that someone will knock into her by accident, but so far so good. We are not rushing to get back into fuLl time school, just keeping it all low key, and the school are great, letting her set the pace and tell them when she is coming in. In the few days post op, I thought it was going to be such a long journey, but once the pain meds were reduced, she seemed to recover much more quickly - I think their brains get a bit addled by the meds. Having said that, I have to say that the hospital were right onto her pain management, and the best advice someone gave me was to keep on top of the pain. My daughter weaned herself off the OxyContin and endone once we had started following the reducing regime, and at four weeks she is taking nothing. All the best for your upcoming surgery, I know I found once we got to it, we just went with the flow and everything gradually worked itself out. I wish you all the very best!
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