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Old 13-02-2013, 06:17 PM
Fortydegrees Fortydegrees is offline
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Default Daughter with 40 degree curve

Hi all,

I am new to this and thought I would introduce myself. My daughter just turned 13 and has a C shaped curve of 40 degrees. Prior to October last year she was a 'normal' healthy child. We went to the GP for another reason and my daughter mentioned having back pain while running. That is when we found out about Scoliosis. Prior to this I had never heard of it. I'm not sure if I am the only parent who didn't know about it so I have emailed the high school to encourage the self-detection program.

We saw the specialist the other day and were told that a brace wouldn't work, and that surgery was the only way to go. I don't want to accept this. I am hoping and praying that the curve doesn't get worse as she isn't in pain.

I am happy to chat/message other parents. I have the usual concerns, lack of sleep, not insured, terrified, and you know the rest. I read other people's posts and just want to give them all a big hug.

Take care,

S.
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Old 13-02-2013, 11:46 PM
Rodverta Braefusion Rodverta Braefusion is offline
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Smile Re: Daughter with 40 degree curve

Hi fortydegrees and welcome to the forum. May I ask if the specialist you saw was in fact a Spinal Surgeon with a Fellowship in Spinal Disorders. My understanding is that a curve must reach 50 degrees before surgery is contemplated. Of course other health factors may play a role as to why he has suggested that surgery is the only way to go. My personal opinion only - seek another opinion. There are people out there with far worse curves (90 degrees) and because they have no pain, surgery is not an option for them. I am sure you have many questions you would like answered and you have come to the right place. I have said it many times - the members on this forum are awesome and very happy to help based on their own experiences. Best wishes RB.
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Old 14-02-2013, 09:33 PM
Fortydegrees Fortydegrees is offline
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Default Re: Daughter with 40 degree curve

Thanks for that information RB. This specialist will not be operating. We will have to see a surgeon in Sydney. We are having another x-ray in a month to see if there has been any progression. The specialist we saw said going by her curve and the position it is in (and that her trunk has shifted), that a brace would not help her and a curve like hers will continue to curve. I am not ready to take his word for it yet.

I am glad you mentioned the 50 degrees, as this was a question I had for the specialist. What I am unsure of is how do we know that a brace won't work and are we wasting time? Should we be trying a brace out? I will have a list of questions for the specialist when I see him in a months time.
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Old 15-02-2013, 12:50 AM
Rodverta Braefusion Rodverta Braefusion is offline
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Default Re: Daughter with 40 degree curve

Good to hear that you will be seeing another specialist, unfortunately, I have very little knowledge about bracing. Perhaps some of the other parents will jump in for some support here. You have to expect that all surgeons differ in their treatment methods. For example:
after my surgery, I was not braced nor sent to rehabilitation for two weeks, however, other patients have had to wear a brace home and then you hear of others who go to a rehab centre for a couple of weeks. At the end of the day, what is best for your daughter is what is most important and a very skilled surgeon will help you make that decision. Best wishes RB
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Old 17-02-2013, 10:15 AM
Hobbs Hobbs is offline
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Default Re: Daughter with 40 degree curve

Hi, my daughter had her operation in2011. She has a connective tissue disorder called Marfans so a brace was not going to have any effect on her scoliosis.
If your daughter doesn't have a connective tissue disorder I think it's well worth seeking ways to to holt, slow down or support the scoliosis. From what I know there are many variations, causes, growth rate, degrees, etc of scoliosis, so it's an individual thing as to what will work or not.
With all the growth and hormones in puberty, its common for scoliosis to suddenly develop.
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