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Old 16-02-2012, 12:15 AM
jane jane is offline
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Join Date: Feb 2012
Posts: 67
Default Very worried-please help

Hi,
My 14 year old daughter has just been diagnosed with scoliosis. As we are waiting for a specialist appointment I have so many questions and no definitive answers and I am worried to the point of sleeplessness. She has a double major curve and has the rib hump when leaning forwards. Her spine is a very curvy S but we have not been told of any angles yet. Her major growth spurt occured last year -March to December. She has described having some difficulty taking deep breaths when swimming, especially when turning at the wall. From what I have read this sounds like structural scoliosis? Can this be treated? The impact on her breathing is worrying me. In the meantime I have tried to ascertain if she should be continuing with normal sporting activities. She is a triathlete and a swimmer. Should she keep running (4km training on gravel)? Also she wants to go to a party involving waterskiing soon and I am not sure that this should occur as she has not skied before? I have so many questions. If you could reply to me as soon as possible it would be great.
Thanks
Jane
  #2  
Old 16-02-2012, 06:22 PM
Dr Scoliosis Dr Scoliosis is offline
 
Join Date: Apr 2009
Posts: 187
Default Re: Very worried-please help

Thank you for your enquiry. Your concern is more than understandable and especially so as you probably have had no previous contact with persons who have scoliosis or were even aware of the condition. The page About Scoliosis on our website should be helpful to you.

In the absence of curve measurements it is very difficult to provide anything but general comments.

If your daughter has what is called a double major curve pattern and this is of the idiopathic type then you have not a great deal to worry about. Curves deteriorate during the rapid growth spurt which occurs in girls between 11 and 13 years of age.

It is only with very major curves that there is any interference with respiratory function so it is more than unlikely that your daughter's difficulty taking deep breaths when swimming is in any way related to her curve.

Generally speaking, when curves are not in the treatment category, and only evaluation will determine this, most surgeons do not put any particular restrictions on physical activities.

One thing you need to be aware of is the advice that your friends and relatives will give you. When one of your children has something significant wrong with them this often comes up in conversation and so many people are willing to offer advice when they have no responsibility. When you see the spinal specialist he will accept responsibility for all he tells you so it is best to wait until you have that appointment. If you are particularly concerned it is reasonable to ask your family doctor to contact the specialist who has been nominated to ask if the appointment can be brought forward.

I trust this advice is helpful.

Dr Scoliosis
 

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