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Old 16-06-2010, 11:00 AM
Crazymum Crazymum is offline
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Default Going to a specialist FINALLY

Hi Guys,

My name is Kim, I have a 15 yr old son that has been diagnosed with scoliosis, at first we were given no information and I did most the research myself.... Not a good idea when you have no idea what is going on inside your own son's body. I ended up going to my chircorpractor who took Xrays as a step to find out what the damage was, we find out that his lower spine is 35 degrees and his upper is 32 degrees, this freaked me out but the chirocpractor said we will keep an eye on it and Xray every 6 months well after the last lot of Xrays and been told nothing had changed my son had had enough, he told me he would rather hang himself rather than nothing been done, I was so upset as he went off to school I went out to my Inlaws in tears asking them what to do, My MIL organised to go to her GP. so we went off to a GP got a referal to see a specilist and now we are off to a specilist on the 24th June .....

My question is how do I make the most of this appointment? Do I try and get my son who is shy to talk to the dr and explain his point of view or what do I expect, I suppose every speicailist is different.

Sorry for rambling on I just feel so helpless, he is the only child out of my 5 that has this problem

Thanks!
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Old 19-06-2010, 05:41 PM
aabxy aabxy is offline
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Default Re: Going to a specialist FINALLY

(I wrote an answer, and it got lost, so this is the second time around. Grrrrrrr!)
Dear Kim,
I understand that there is a dilemna here. I see that you don't want to talk "over your son's head" sort of, to the doctor, and I think that's very wise.

The following has helped in our family. When I accompany family members to the doctor, sometimes I find it helpful to turn to them and say such things as:
- "You mentioned to me that ..."
- "You expressed concern about ..."

This approach has worked for us, anyway. Our son is now grown up and goes to his own appointments. But my husband still wants me to be there at some of his appoinments.

I would also like to mention that helps to prepare a list of questions beforehand so nothing is forgotten during the appointment. However, if the list is long, it may require more than one appointment to get through the list.
Good luck!
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Old 20-06-2010, 12:20 AM
Rodverta Braefusion Rodverta Braefusion is offline
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Default Re: Going to a specialist FINALLY

Hi Kim and welcome to the forum. Is your son in any pain or is he uncomfortable with his appearance? I am so sorry to read about your dilemma. Based on my experience with my daughter (Chronic fatigue & PVS). When i go to an appt with her, (if she wants me to go in with her), I let her do all the talking and just listen. Then usually, the Doc might say ' and mum have you noticed anything or is there something you would like to add'? i then add my observations if any. Likewise, pre and post surgery, if my daughter was free, she would attend my appoints, so that she could input for me, in case i forgot something. My 5cents worth (cause we don't have 2c anymore). Prior to your appt, ask your son how he wants the appoint to go. Does he want to do the talking and have you there for support or does he want you to do the talking. Write down a list of questions and bring it with you. Hope this helps. Best wishes.
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Old 20-06-2010, 01:19 PM
Dom's mum Dom's mum is offline
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Default Re: Going to a specialist FINALLY

Hi Kim,
Sorry to hear about your son. We are just going through it with our 14 year old son and it is overwhelming. We have found that the doctors are good and answer questions before you need to ask them (though there always seems to be more you should have asked) and they direct most of their questions towards Dominic and treat him as an individual. He too is pretty shy and doesn't say a lot so I step in when needed. We have been letting him deal with things as he can and he will come to me with questions/concerns along the way. We have been to Sydney twice so far and he is always very quiet at first, then has quite a talk about it on the way home. I worry about boys and not talking and have spoken to his year coordinator at school and also the counsellor who are keeping an eye on him. Also he is lucky to have had a couple of good friends since kindergarten so I have filled their parents in on what is happening. Nobody makes a lot of it but he has a little support network. At first though he didn't want anyone to know so we went slowly.
I hope the appointment goes as well as it can
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Old 20-07-2011, 03:58 PM
kimlorrain kimlorrain is offline
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Default Re: Going to a specialist FINALLY

Hi Kim
My name is kim also, how did you go at the specialist, what was the outcome and how does your son feel about it. My daughter is 17 and we are booked in for surgery end nov. her curve is 45. Thanks
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Old 26-08-2011, 05:02 PM
starbug starbug is offline
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Default Re: Going to a specialist FINALLY

I'm called Kim too.
My parents took me to a specialist recently, and I am currently in a Spinecor brace. The specialist seemed to think that it would be really awesome if my spine stayed like it is, let alone improving with the brace. If it gets worse, I might have to have surgery.
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