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Old 04-05-2015, 07:55 AM
missgm missgm is offline
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Default 2015 pre and post T4-L1 - 12 days after

Hello

thought I would share my experience and daughters op. MissG was 8 when we saw the uneven shoulders & had an X-ray and had a they identified a mild scoliosis & said come back in a year. Hmmm, not a great start & we didn't understand what the impact was.

So from there we saw a remedial massage who evened her shoulders up and there was no pain. This went on for years and as there was no pain, and no visible difference we just thought it was ok. Slowly the rise began to show on her right shoulder blade at 13 and by 14 I took her to see a chiropractor who got quite cross with us. Off we went to X-rays & then a bracing specialist who all said, no this is not mild, this is severe & you have missed the moderate area. Miss G has been horse riding and netballing regularly at this point. She was very fit & very good core & leg strength. No pain.

So the brace specialist in 2014 said now at 14 you are 50 degrees. Crap. Still no pain and shoulders even but right back shoulder rise and left front rib protrusion. She had a S curve. We saw 2 physio's, a chiro & bracing specialist, 2 surgeons & another family and all had the same conclusion. Surgery. We decided as she was finished her growth plates that we would schedule.

So the anxiety leading up to surgery was dreadful & to remain strong was hard. By the time we got to surgery Miss G was 55 degrees in the upper S. However I think this was probably the worst of it - the decision and the anxiety. Once she had the surgery which was great we can start to move on again.

Physio had her up and walking 20hrs after the surgery and each day more and more. Lots of endone, a bit of nausea when moving from CCU to the ward and getting pain mgt level. Each move to a new ward or a new level of recovery has its pain management modifications.

Walked out of the hospital on Day 6 with no frame, but lots of lying flat and we are now trying to spread the endone further apart and less & continuing on with Panadol. Small walks out to the horses each day but then exhausted.

Her upper curve was corrected from 55 to 10. Lower curve is less at the moment and supposivly will correct itself in the next 3-6mths.

In the operation they said her gut had started to twist already and may have explained some post nausea, however all other organs were in a good place. Some muscle spasms and spiders she calls it being the nerves crawling along her back now that are the muscles and nerves finding their new place.

Hope this helps some nervous parents and kids facing the whole thing. I know this forum helped me understand there were others out there doing the same.
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Old 09-05-2015, 03:02 PM
missgm missgm is offline
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Thumbs up Re: 2015 pre and post T4-L1 - 12 days after

We are now 2 1/2 weeks post op and bandage has been removed with just the strip of tape covering the scar which looks minimal. MissG is moving around alot more, plus eating more. And 3cm taller.

Upon returning home at day 6, we were 2 endone around every 3 hrs, now day 16 we are 1 endone about 4 hours apart and getting less. About 3 walks out each day and sometimes a quick trip, but the difference in 10 days has been another great leap. getting up faster and alot more movement.

I am so glad this part is behind us. I know there are many more hurdles to come, but going well so far.

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Old 11-05-2015, 08:21 AM
Jan Jan is offline
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Default Re: 2015 pre and post T4-L1 - 12 days after

Hi,
Sounds like things are going as well as possible! It is such a relief isn't it? My daughter just had her 6 month review last week (T4 to L3 fusion at age 16), and she is thrilled that she is now able to start light running and back to netball. She played 1/4 of netball on Saturday and loved it - she looked good on the court too and scored a couple of goals.
All the best with your daughter's recovery.
Jan
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Old 13-05-2015, 07:30 PM
missgm missgm is offline
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Default Re: 2015 pre and post T4-L1 - 12 days after

Hi Jan & everyone

Yes a big relief to be on this side.The weeks seem to go very slow leading up to surgery and then wiz past after. So we (missgm) is now 22 days. Good days and bad days really - I say its like 2 steps forward and 1 step back. Some days a lot and some days not much. Much more active at night.

At 3 wks, MissG is now totally managing her own pain control which is great & she writes it down. The panadols inbetween the endone seem to work best to spread it out - however time slips and then you thing oh bugger, just take the lot at once.

I think now we are 5-6 hrs apart of endone with panadol with and in-between varying. Very early morning and waking up morning are probably worst as there is a lot of sleeping with little movement at 3 weeks - so I am guessing its like waking up like me at 49, after a big sports game, stiff and sore after lying flat for hours. MissGM is worst now in the morning and wanting pain mgt. But really 3 weeks on - its miraculous.

It was great to hear Jan - about light running at 6 mths as some days you just can't see it. But my feeling is that to do this while you are young if you are in that place.

School is beckoning to get back to it in 3 weeks and I think this will be OK - being 6wks all up off. She will love it once back but its also very daunting. Anyway - add to this post if you want. I love any others stories as they all help.

Di
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Old 14-05-2015, 10:02 AM
Kay Kay is offline
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Default Re: 2015 pre and post T4-L1 - 12 days after

Hi Di & Missgm,

My daughter has had two lots of surgery Nov 2011 T11 - L2 and Dec 2014 T3 - T12. I am very happy to report that she recovered well from both surgeries and the result is marvellous.

With reference to your comment that your daughter wakes up stiff and sore from sleeping on her back, I was wondering if she is has tried sleeping on her side? My daughter, on both occasions, slept on her side with a pillow lengthways between her thighs and a pillow behind her mid to lower back for support. She found this was more comfortable than lying on her back.

We were fortunate to have the Christmas break holidays to recuperate, but she was eager to go back to school, and the staff and her friends have been very supportive. She has used a backpack on wheels for transporting her books, this time I purchased an upmarket one, which is working very well, the first one was a cheapie and was retired.

She also decided to stop taking pain medication once we were home. She didn't have endone or tramadol in hospital, as her system reacts to these medications & once home she decided Panadol was not effective as the pain came in spasms and was not continuous.

Kids are amazing how they can take things in their stride. All the best for your daughter as she continues to improve and returns to school.

Regards, Kay
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Old 18-05-2015, 08:15 PM
missgm missgm is offline
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Default Re: 2015 pre and post T4-L1 - 12 days after

Hi Kay

Wow, 2 surgery's that must have been very confronting. Well done for your amazing attitude. Can I ask why 2? its ok if you would rather not say.

MissG if napping during the day may sleep on her side but night time is pretty much flat on her back. I am thinking the lack of mobility during the night might be the sore'ness she talks about in the morning, however maybe its just the muscles and nerves still doing their thing. We have tried neurofen at night to not much difference. Might try a hot shower at night. who knows - really its probably early days and just takes time for it to settle. The creeping spiders (nerves) do not get a mention anymore, and at night she seems to be jumping all around the place chasing the cat, like a toddler before bedtime - the last hoorah.

We are now 4 weeks and compared to this time last week we are much better, with a bit more sitting coming in now which is another angle again (rather than just standing and lying). I think over the next week sitting will probably come in more as a practice for school. Plus we are now about 8-10hrs between the 1 endone & then the panadol 6 hourly - slowly slowly.

Thanks again for the responses.

Di
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Old 25-05-2015, 05:31 PM
missgm missgm is offline
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Default Re: 2015 pre and post T4-L1 - 12 days after

And here we are now at 5 wks post op, and wouldn't have thought the leaps and bounds to be so great.

At 4wks MissG just stopped all pain killers and then on the weekend she spent the whole time out at a horse event (just watching & walking) and no pain and no need to lie down. All good really.

So 5wks tomorrow and back to school next week part time when she is 6wks. the only whinging is about the maths tutor we are bringing in to catch her up to class.
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