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Old 08-12-2012, 11:14 AM
Eliz Eliz is offline
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Question Where to go?

My son is 15 and a half and has just been diagnosed 2 weeks ago with a 53 right thoracic curve. We are still in a bit of shock and have just got the specialist appointment for next February. I am coming to understand that this is a lengthy process and I need to stop worrying so much however if surgery is indicated then better to have it in Year 10 than 11 or 12? We live in Perth and I am seriously thinking that I will get a referral for the top guy in Melbourne because the waiting times are shorter... Any ideas?
Great to hear some other stories, the kids are really courageous!
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Old 08-12-2012, 12:15 PM
cheryl anne cheryl anne is offline
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Default Re: Where to go?

Hi eliz, my thoughts are with you and your son, it is such a stressful time in the beginning, and a shock. I couldn't think of anything else. My 14 yr old daughter was diagnosed 6 mths ago with a 44 degree left hand thoracic curve. She now has a 50 degree upper and 30 Lower and needs fusion t7 to l1 . She has had X-rays and mri's and was too far gone for a brace when she was diagnosed. We have had a couple of opinions and have decided to get it done in Brisbane. There is around a three month wait in the public system up there and it's not any quicker in private. Sorry I can't help you with Victoria but I'm sure someone from down there will let you know. This forum is wonderful for information and positive comments from people that Are going through exactly the same worrying decisions. Your so not alone and our thoughts are with you. Cheryl
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Old 08-12-2012, 12:56 PM
Eliz Eliz is offline
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Default Re: Where to go?

Thanks Cheryl, your daughter progressed quickly. Great that you have a surgery time booked but now you have to face that!
I was only thinking melb because I have some family support there but maybe I should look at Sydney or Brisbane. I think he is actually thoracolumbar. Doesn't have breathing issues thankfully but is painful and tired after a day at school and can no longer play tennis without back pain.
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Old 08-12-2012, 04:29 PM
Christine Christine is offline
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Default Re: Where to go?

Hi Eliz

I had my surgeries in Melbourne 2011 and 2012, and was in hospital only four weeks after my specialist consultation, both times. Very quick! I do have private cover though.

The worst was the longer wait to actually see the specialist, which was about four months each time...

Christine.
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Old 08-12-2012, 08:39 PM
jane jane is offline
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Default Re: Where to go?

Hi Eliz,
We are from Perth too - actually Bridgetown. We went to Melbourne for surgery in June. My daughter now has just finished Year 10 and the surgery is all behind her and she can now face Yr 11 and 12 without worrying about it. The Melbourne people really looked after us and it proved to be an excellent option. I am happy to give you tips about travel and follow up etc. Please feel free to Private message me or email me if you require any help.
By the way my daughter is great - back in the pool, on her stationary bike and jogging.
Hope I can help you.
Thanks
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Old 12-12-2012, 01:49 AM
Eliz Eliz is offline
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Smile Re: Where to go?

Have now got appointments in Perth and Melbourne for Feb but still looking for someone to see us in January. At least the ball is rolling!
Thanks for the support.
Liz
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Old 03-02-2013, 04:48 PM
Eliz Eliz is offline
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Default Re: Where to go?

We now have surgery booked for feb18 in melboune! Really fast. Thoracic curve measured at 60 degrees. If we stayed in WA it would have been a brace until they could fit us in for surgery... My son is pleased to get something done quickly, especially at the beginning of year 10. Nerves have not kicked in yet.
Does anybody who goes into a brace at 60 ever get the curve reduced? Especially thoracic?
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