Scoliosis Australia Forums  

Go Back   Scoliosis Australia Forums > Adults > Non-surgical management

Reply
 
Thread Tools Search this Thread
  #1  
Old 13-05-2012, 03:21 PM
JO MELBOURNE JO MELBOURNE is offline
Registered User
 
Join Date: May 2012
Posts: 7
Question how to manage pain from scoliosis

Hi, I am 24 y.o and have scoliosis, kyphosis and lordosis.
I have had chronic back pain issues for about 5 years now with pain that has gradually worsened over this period. I have 'winged' scapulas with hyper-mobile joints (particular my shoulders) that tend to injury very easily.

I have seen almost every kind of health professional:
-GP, physio, chiro, myotherapist, spinal specialist/ surgeon, musculoskeletal specialist etc

My curvature is for non-surgical management, however I am struggling to manage the pain. My current methods are:
-heat packs/ patches
-regular massages
-gentle exercise (walking, physio exercises)
-Pilates (done in the past)
-now on endep (temporarily for pain relief)

Does anyone have any suggestions on how to further manage back pain on a day-to-day basis??
I am worried that when I come off the endep meds I will not be able to handle to return of my pain!
Reply With Quote
  #2  
Old 17-07-2012, 05:59 PM
JO MELBOURNE JO MELBOURNE is offline
Registered User
 
Join Date: May 2012
Posts: 7
Default Re: how to manage pain from scoliosis

Does anyone have any ideas??
Reply With Quote
  #3  
Old 18-07-2012, 06:01 AM
rosie rosie is offline
Registered User
 
Join Date: Aug 2010
Posts: 148
Default Re: how to manage pain from scoliosis

Hi Jo

You sound as you have tried everything...hum my thoughts would be to see another spinal specialist and state the amount of pain you are in. I dont know the degrees of your curves but if it is causing alot of pain there must be some surgical procedure to help relieve this. Its not fun livng in constant pain and you are so young to have to have pain for the rest of your life. I am in Brissy so cant recomend anyone down your way, sorry.
Rosie... hang in there
Reply With Quote
  #4  
Old 31-07-2012, 02:17 PM
nutmeg nutmeg is offline
Registered User
 
Join Date: Nov 2009
Posts: 5
Default Re: how to manage pain from scoliosis

You might find the Alexander Technique helpful.
http://www.austat.org.au/
Reply With Quote
  #5  
Old 19-09-2012, 07:09 PM
JO MELBOURNE JO MELBOURNE is offline
Registered User
 
Join Date: May 2012
Posts: 7
Default Re: how to manage pain from scoliosis

Thank you for your responses. Is there anyone who lives in Melbourne who has a similar problem??
Reply With Quote
  #6  
Old 20-09-2012, 06:09 AM
JoneSuza JoneSuza is offline
Registered User
 
Join Date: Sep 2012
Posts: 1
Default Re: how to manage pain from scoliosis

Hello my day one on forum, year 44 of living with scoliosi pain. I am 55 years old. Over time pain levels fluctuate. When bad I, go to hydrotherapy pool, physio in water that is heated to 34 degrees, hanging in a swim ring is really gentle traction and is wounderous for relieving back spasms, relieving referred pain down in to buttocks and leg, also have Breville heat pad I sleep with, take short course of antinflammatories. To maintain strength I swim, I had a really good summer last year, I have moved to live near a beach and I swam nearly every day.
All just ideas, what works for me may not work for you.
Sorry about the spelling of scoliosi, I have a new tablet and the predictive text will not let me type it properly, not in the dictionary! Add the last s and it changes to sclerosis.
Reply With Quote
  #7  
Old 20-09-2012, 07:49 AM
Rodverta Braefusion Rodverta Braefusion is offline
Registered User
 
Join Date: Oct 2009
Posts: 396
Default Re: how to manage pain from scoliosis

Welcome to the forum JoneSuza. That's funny about your computer. I also tried, well not hydrotherapy, but I did do Pilates and Aquarobics. I did this up until about one month before surgery. I did not want to stop, but my instructor suggested that I do as some movements (even the most gentle ones) were giving me a great deal of pain. Hope you find something that works for you. Best wishes.
Reply With Quote
  #8  
Old 20-09-2012, 08:47 AM
Christine Christine is offline
Registered User
 
Join Date: Mar 2010
Posts: 266
Default Re: how to manage pain from scoliosis

Hi Jo and welcome to the forum!

I live in Hobart but flew to Melbourne to have my corrective surgery last year, and a bit more this year. I recommend my surgeon thoroughly and will send you a Private Message with some details.

I would totally bypass going to physio/chiro/osteo if you have a decent curvature. As someone has already suggested, another scoliosis specialist's opinion would be a very good idea as it sounds like you need to have an expert examine your spine. Having to endure pain when you are young is awfully hard. Not so hard when you get older as everything hurts then

Throughout my life (I am now 50) walking and exercise, staying trim and fit seemed to be the thing that helped me most, until I had to stop as it became too painful. I think my pain threshold is pretty high though and I just put up with the endless aches and pains.

You may help me with something ... my GP has given me some Endep, but thought he gave them to help me sleep, not for pain, and I am a bit reluctant to take them after reading up on them. What are they like? Do they help you sleep and relieve pain?

Christine.
Reply With Quote
  #9  
Old 20-09-2012, 10:37 AM
rosie rosie is offline
Registered User
 
Join Date: Aug 2010
Posts: 148
Default Re: how to manage pain from scoliosis

Hi Christine
I have taken endep for a long time now for neuropathy pain in my knee. I have had no side effects and I think they do help with sleep. They are reasonably safe and it has been around along time. I am on only a low dose though
Rosiex
Reply With Quote
  #10  
Old 21-09-2012, 10:24 AM
Bee_babe82 Bee_babe82 is offline
Registered User
 
Join Date: Mar 2012
Posts: 90
Default Re: how to manage pain from scoliosis

Hi I'm also on endep I've been on them for two weeks I find they help me sleep so much better but I also get tired in the day and at about 5:30 6 I feel like going to bed and sleeping my doctor said they are also for pain but I haven't noticed a change in my self... I'm also in constant pain even while on targin I have physio which works for that day but then my pain returns the next day I have been told to exercise in the pool and I've been given exercises to do by physio but I haven't noticed any difference yet but hot baths help a lot and massages but like I said it only helps for that day I'm from Melbourne I haven't seen a specialist yet so I don't know if I can have surgery or not. I hope I've helped you... and endep is also a antidepressant too but I think it only works if you are on 50mg or higher I was scared to take them to after reading about it and I think I might go off them because I'm always tired but they could work differently for you.
Reply With Quote
Reply

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off

Forum Jump


All times are GMT +10. The time now is 07:47 AM.

This forum is a project of

  
Spine Society of Australia

Powered by vBulletin
Copyright ©2000 - 2019, Jelsoft Enterprises Ltd.