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Old 24-11-2009, 08:03 AM
elkay elkay is offline
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Default How do men cope

Hi I am new to this forum so nice to have the oppotunity to converse with others on this subject. My 18 year old son was diagnosed 18 months ago. I have found it difficult to find info on how scoliosis affects males eg : work,sport, their confidence etc.
He is on no particular treatment, needs to return to specialist in 6 months. He suffers with pain,although a lot of info I have found states scoliosis should'nt cause pain ?
Find massage helps and exercise to keep back muscles strong.
Any feedback would be great.
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Old 24-11-2009, 05:45 PM
Rodverta Braefusion Rodverta Braefusion is offline
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Default

Hi elkay,

Welcome to the forum. Do you know the Cobb angle/s of the curve? I also read that Scoliosis shouldn't cause pain. I had constant sciatic pain, felt lousy after eating anything and my social life was also affected to a certain degree. My standing tolerance was 5 minutes if lucky. I tried everything, physio, chiro (did help to relieve pain - but not for long), nerve root blocks and facet joint injections. Now after surgery, I am pain free. Its still early days yet (almost 6 months post-op) but life is great and steadily getting back to normal. I'm not allowed to play netball anymore, but hey, you can't have everything!!! But then again.......

If you have any questions, don't hesitate to ask.
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Old 25-11-2009, 02:41 PM
Jen Jen is offline
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Default Re: How do men cope

I don't know why some doctors promote the idea that scoliosis isn't painful. I didn't have pain until my 50s, but that changed after my curve began to progress. Standing or lifting anything weighty was becoming quite painful. I've heard that pain is quite common as early as the teens.

Elkay, regarding your question about how scoli affects males, you might like to try some other sites that have been going for much longer than this one. I hope it's ok to put a link here? Mods, feel free to delete if this isn't allowed.

http://www.scoliosis.org/forum/searc...archid=2216437
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Old 26-11-2009, 07:57 AM
elkay elkay is offline
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Default Re: How do men cope

I will check out other sites thanks. My son unfortunately had to quit his first job after leaving school as had some heavy lifting involved.Took him 9 months to find another job and although this is also physical he is handling it better.We live in a rural area so jobs few and far between.It's hard to know wether to let prospective employers know about scoliosis as people dont understand the condition and as soon as you mention back problems they steer clear of you out of fear.
Having scoliosis has been hard at times for him but has also made him a stronger person as had to deal with jibes about his "HUMP" and was never very good at sports as not as agile as others.Also wont take tshirt off to go swimming etc.He sticks up forhimself no worries with his sense of humour and does have a great bunch of friends who understand and stick up for him also.At what point does a specialist think that surgery is neccesary ?
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Old 26-11-2009, 02:31 PM
Jen Jen is offline
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Default Re: How do men cope

I believe surgery is offered by most scoli surgeons once the curve reaches 40 degrees, is progressing and/or there is pain. The surgery is to halt the progression and ease the pain and the cosmetic result is a bonus. Do you know what your son's cob-angle is? Is the curve being monitored? If it is progressing (worsening), he is likely to be a candidate.

It sounds like your son is handling his scoliosis very well.
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Old 26-11-2009, 04:24 PM
Dr Scoliosis Dr Scoliosis is offline
 
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Default Re: How do men cope

Quote:
Originally Posted by elkay View Post
Hi I am new to this forum so nice to have the oppotunity to converse with others on this subject. My 18 year old son was diagnosed 18 months ago. I have found it difficult to find info on how scoliosis affects males eg : work,sport, their confidence etc.
He is on no particular treatment, needs to return to specialist in 6 months. He suffers with pain,although a lot of info I have found states scoliosis should'nt cause pain ?
Find massage helps and exercise to keep back muscles strong.
Any feedback would be great.
A comment. It is usually helpful if someone is confronted with a medical problem about which they know little or nothing for them to prepare a list of questions they would like answered at the consultation. Most surgeons have more or less set routines for the management of spinal curvature and their secretaries are usually aware of these. Hence, if there are one or two questions left unanswered after a consultation, a phone call can often provide the information.

Dr Scoliosis
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Old 08-12-2009, 03:00 PM
Godiva Godiva is offline
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Default Re: How do men cope

Both my surgeons (child and adult specialists) quoted a 55 degree curve (if no other problems are present) as the time to think about surgery. Curves over a certain degree at a young age have a poor prognosis (they will get very bad later in life). The theory is that the surgery is easier for teens.

If the hump is visible to most people it must be quite a curve or he is perhaps quite skinny.

I recommend that as a parent, while you can, encourage him not to do any heavy lifting. Most activities help you feel normal and as a guy he may do it for a job under pressure but it is quite ill advised for scoliosis. Strengthening the back and torso will help with self-image I think
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Old 30-12-2009, 08:17 PM
Allan1960 Allan1960 is offline
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Default Re: How do men cope

I am a 49 yr old male, and developed scoliosis early about 12 or 13, at the time finances and medical Knowledge were in short supply.
Work over years and schooling prove a challenge in sitting, standing and distance for any length of time.
Work now, I learned to push my limits and tolerate pain to a degree (no pun) it is not easy getting to the point I have reached in my life.
but this is my story and everyone is different, be patient and don't push your limits as it can hurt if you try too much too soon, cheers
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Old 28-10-2012, 08:53 PM
Dan Dan is offline
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Default Re: How do men cope

Hi, 39, have been a nurse for 17 yrs now so lots of time on my feet. Never had surgery. Massage helps with tight back. Best thing I found is being active, doing lifting and remaining strong. If I slack off on exercise I feel worse. Swimming and surfing particularly good. I have a thoracic curve with 50deg angle and usual lumbar compensation. My right shoulder gives me grief at times and I have a bit of a hump, right side too. Socially yeah it affects you, but then I was never the cocky young male either. Now I'm older I care but not as much, if anyone comments I use it to educate them and others. Surgery?? Well you can always find someone who wants to operate... I have no intention to have surgery until totally option less. If that time comes I will then consider more the risks of surgery and anaesthesia.
Dan
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