Thread: Mafran Syndrome
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Old 04-10-2011, 07:16 AM
MySon MySon is offline
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Join Date: Sep 2011
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Default Mafran Syndrome

Hi everyone

trying to ensure I have everything covered before Dane's surgery and some of his other conditions have made me concerned about Mafran syndrome.

He has a very strong heart beat, trouble emptying his bladder fully, very long arms, legs, toes and fingers and I think a bit of claw toe.

Does anyone know about this syndrome - I am seeing a neurologist on Friday to ensure they take all the right precautions.

Any advice out there?

Chris
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