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Old 19-10-2012, 04:09 PM
Dr Scoliosis Dr Scoliosis is offline
 
Join Date: Apr 2009
Posts: 187
Default Re: We welcome your comments

Joey, thank you for your post and, indeed, you raise a very important aspect of the care of children with spinal curvature.

First, may I say that we view this forum as a form of "support group" and we trust that this is helpful to those who participate. However, one can appreciate the importance of face-to-face contact for adolescents and their parents when a family member is facing a major treatment program.

It is to be acknowledged that scoliosis and kyphosis treatment is largely centred at teaching hospitals and particularly children’s hospitals. Many years ago the Dr Scoliosis on duty started a support group which proved to be successful. Surgeons are very busy people and have little time for professional activities outside their working hours. For example, a support group can meet only out of hours, so to speak – that is, in the evening.

The approach which was used was to enlist the assistance of the Social Work department at a large teaching hospital. Social Work students, who are usually female, as part of their education undertake what is called a "placement". This is usually in some form of health-related activity for several months. A student was contacted through the hospital and the related university. The project took off very well indeed and it soon became clear that the most important ingredient was enthusiastic mothers and so the group became self-sustaining. Obviously there are variations on what has just been detailed.

To take matters further you could make an appointment with the surgeon looking after your daughterto see if there is a possibility of taking action along the lines suggested.

Good luck.

Dr Scoliosis
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