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littlepink
02-06-2013, 08:58 PM
We have recently had our daughter diagnosed with Scoliosis, noticed her hip protruding on one side. She has a 57 degree cob angle in her upper back and we are having her placed in a plaster cast next week.
Is there anyone out there that has a child of similar age recently diagnosed? Any advice on how to break the news to a happy energetic 6 year old girl?

M&M
03-06-2013, 01:22 PM
Hi littlepink

Sorry I don't have any specific advice as my daughter is 13 and only recently diagnosed.
Generally though as the mum of 3 girls, with any health issues I have found honesty is the best policy. Kids seem to know if we are not telling the truth. Try to use a level of language that your daughter understands and encourage her to ask questions if she doesn't understand something.
A lot will depend on your daughter's tolerance. We call our 13 year old 'princess' as she is so sensitive, she could feel a pea under 20 mattresses :) . She has never handled pain or medical issues well and gets quite angry with 'problems'.
Try to reward your daughter for being brave etc with small toys or books or things she likes.
Listen to her complaints and be compassionate. Lots of :hug:
Keep her busy with activities she can still participate in. A 'notebook' or laptop computer with a wireless usb internet connection might be a good idea. Lots of educational stuff is free online and lots of schools now email homework etc if your child is absent. Games can be used as rewards or for keeping miss occupied at difficult times.
Encourage your daughter to keep a diary including photos - two purposes - a way of venting without affecting others and a great way to look back at how far she is progressing.

Cheers
Carol

littlepink
03-06-2013, 02:21 PM
Thanks Carol
We were heading down your path.... we have been honest so far. It is quite daunting for us so I can only imagine what must go through her head. We have a pretty tough cookie generally but I do think this one will test her. She always has got plenty of :hug: but I'm definately up for a whole lot more.

We has also invested in an ipad (it is actually mine but you wouldn't know it) ;) and there are some great games and educational things on there.

Has your daughter had the plaster on already? If so, how much does it restrict her everyday life?

I appreciate your help with this it is great to chat to other people in the same boat

Thanx Tanya

M&M
03-06-2013, 10:58 PM
Hi again littlepink

My daughter is going to see a specialist for the first time on Thursday, so I have no idea if she will need any treatment yet, or if it is just wait and see.
On this forum, if you click on the Search tab just right of middle in the green bar at the top, then type 'plaster' in the box, any threads or posts with the word will be displayed with the word plaster in bold red. This might be an easy way to find other people's experiences.
And here's a :hug: for you.

Carol

Loulamb13
04-06-2013, 08:09 PM
Hi there, check out the Curvy Girls parent forum on facebook - there are lots of parents who have younger children with scoliosis and they are great for advice. Also the girls can look at www.curvygirlsscoliosis.com (http://www.curvygirlsscoliosis.com) - a fantastic web site and forum for girls with scoliosis. It is based in USA but now branching out worldwide. My daughter Louise is 11 and recently got her first brace. She has joined Curvy Girls and is now the Melbourne Leader to see if we can get a peer support group going for girls over here. Have a look, especially at the facebook forum. There are lots of us in the same situation and it's important to connect with as many people as possible. My daughter was diagnosed late last year and is now 10 days into brace wearing - she is up to her 23 hours a day which is great. She (and me) have had so much support from Curvy Girls. Stay strong and it will all be fine. Sarah

littlepink
04-06-2013, 08:24 PM
Thanks for the :hug: Carol, everyone has been very supportive including his forum. Good luck on Thursday I wish you and your daughter the very best!!!

Thanks also for the hint on the search engine I will definitely look into that.:o

littlepink
04-06-2013, 08:31 PM
Hi Sarah unfortunately I am not on facebook I never really saw the benefit maybe this might change my mind. (I'll have my sister check it out)
I will definitely check out the website though thanks its amazing if you put yourself out there you realize you are not alone.
Thanks again for your help

Loulamb13
05-06-2013, 10:53 AM
Hi littlepink - I know I had the same thing with facebook but the adult forum is amazing and worth joining up to FB just for that. There is also an adult section on the website forum. If you want to join up to the forum, send an email to Robin Stoltz and she'll sort that out. Please don't feel alone, it's such a scary place to be especially when it's our littlies concerned. The wonders of the web make it much easier - I remember having my brace as a teen and feeling very isolated. Louise's contact details are on the "contact us" & leader section of the Curvy Girls website so do drop us a message if we can help - I'm sure Lou would be very happy to send a cheery message to your daughter.

M&M
06-06-2013, 10:23 PM
Hi Tanya

Had my daughter's specialist appointment today. I feel so fortunate - my daughter does not need any treatment at this stage, and according to the specialist, is unlikely to ever need it :).
While we were in the waiting room, we met a delightful, cheeky :p 7 year old girl.
Miss A had had a curve of something like 38 degrees and in April had 3 hour surgery to staple her curve to lessen and try to maintain it during her growth period. She was having a check-up to make sure all was well and she could return to gymnastics and other physical activities.
Miss A took a photo of my daughter (hero worship?) but I can tell you, I wanted to take a photo of Miss A - she is a little trooper, and unless her parents had told me her story, I would never have known.
Miss A had a very well used bright pink tablet (computer thingy) that had obviously been a constant companion.
Miss A and her mum and dad were very calm, happy, joking and obviously happy with their decision.
I will remember Miss A when I am feeling aches or pains :)

Regards
Carol

Loulamb13
07-06-2013, 08:59 AM
Hi Carol - that is such great news! Fantastic that the specialist is positive about her continued growth too. Hooray!

Sarah