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tracy
15-05-2013, 11:02 PM
Hi Dr S,

Could you please tell me how long a growing rod can be extended? Is there a measurement in centimetres? Or is it amount of surgeries? I am really keen to know the answer to this.

Many Thanks

Tracy

Dr Scoliosis
20-05-2013, 06:34 PM
Tracy

The length growing rods can be elongated depends on the type used.

Some can be elongated up to 10cm, if there is enough space to fit the overlapping rods in the person's back. In small children, there may only be room for 2-3cm. In magnetic growing rods the length is fixed to about 5cm.

Hope this helps

Dr S

tracy
22-05-2013, 10:27 PM
Hi Dr S,

We have dual endoscopic growing rods. One is being extended more than the other. This is the one with cronic propionybacterium infection. Our daughter has grown approx 15 cm since putting rods in in 10/10. Would it be correct to think 50% was in trunk and 50% in limbs? Is this how its calculated? Also is there any way to know how much growth you would lose by fusing pre-menarche? Our daughter is 160cm at 12.5 years. I am 172cms and we are built very alike. She is in 75-90 percentile range now. Is there any information I can access on this? There is a lot on definative fusion, but I can find nothing on growing rods? Im not very good at the internet. Our last lengthening is in July. Fusion looks around Dec/Jan.Thankyou for you informative quick response.

Many Thanks
Tracy

tracy
27-05-2013, 11:24 PM
Hi Dr S,
I do understand the questions I've asked are difficult. But I've been asking them for 3 months. With no answers. That in itself concerns me. I would like an answer, as this is our baby. Putting her through 6 surgeries already has been hard enough. I got told we are lucky she doesn't have cancer last phone call. And we are so happy it's fixable. But is she ready for fusion? What are the statistics? Our risk of infection were 25 % and we've had 19 boxes of antibiotics since February. Please could I have an answer. We are getting extremely desperate.
Many thanks
Tracy

Admin
30-05-2013, 03:44 PM
Tracy

I feel I must correct a statement you made in your last post. You have had replies from Dr Scoliosis in all of the threads you have started here but one: in some instances multiple replies have been provided by Dr Scoliosis to your further questions within a thread.

Please keep in mind two things:

1. The time given here by busy specialists in providing considered answers to questions is not inconsiderable and is provided gratis as a public service.

2. Advice re management can only be given in very general terms and it is important that you discuss any such concerns with the treating specialist. This is stated on our forum home page and has been pointed out to you previously.

Admin

tracy
30-05-2013, 09:02 PM
Hi Admin,

Please remove me from your files.

Many Thanks
Tracy