View Full Version : Recently Diagnosed

19-07-2010, 03:58 PM

I am a 13 year old girl and i have just found out that i have scoliosis.
I went to the specialist with my parents and i have been told that i won't need to have surgery :hug:but i will need to have a brace. I am a little bit worrried is there anyone out there who is about my age and has a boston brace?
I am waiting to get the mould of my body, is there anything i should be aware of?
Any help would be great?
P.S my curve is 26 degrees and i have right thoraccic scoliosis

Thanks Emily:)

Rodverta Braefusion
20-07-2010, 12:37 AM
Hi Emily, I just wanted to say 'Welcome to the forum'. I don't know much about bracing, i'm still reading bits and pieces about it, but i hope there is someone on here that can help you. Best wishes.

20-07-2010, 04:30 PM
Thank you:)

20-07-2010, 09:02 PM
Hi Emily,

My son recently was diagnosed with scoliosis. He is 15 and has had to start wearing the Boston brace. At first he found it very uncomfortable. His doctor suggested he wear it for a few hours and build up over 2 weeks until he was wearing it about 20-23 hours a day. It has now been about 10 weeks and he is far more comfortable in it. He still needs help with putting shoes on etc but in general he has adjusted.

Another tip I will also give you is that you will not be able to eat normal meal sizes. It puts pressure on your belly so you will have to adjust to eating smaller meals more regularly.

So far his brace is holding his angle of 39 degrees so it is working.

Good luck and let me know if I can try answer any more questions you might have.

21-07-2010, 03:48 PM
Thank for the tips Renee thats great that he has got use to wearing it i am not to happy about the meals because i really love eating food :hug:
But i am so happy that you gave me those tips
talk soon
bye Emily

Dr Scoliosis
21-07-2010, 05:22 PM
Emily, welcome to the forum and we hope it will be helpful to you and your family.

It will be informative for you and your parents to read the Abstract (http://www.scoliosis-australia.org/forum/showthread.php?t=60), which appears in the post by Dr Scoliosis when following the given link, which is the most authoritative article that has been written on the use of bracing in the management of scoliosis of the type you presumably have. One thing is abundantly clear to those doctors who have a long experience in managing spinal curvature. The failures of brace treatment to contain a curve satisfactorily within acceptable limits are nearly always the failure to wear the brace properly. In short, a brace cannot be "too tight". Like a new pair of shoes they are always a little uncomfortable to start off with but the vast majority of patients rapidly get used to the brace and are unaware that they have it on. Your grandmother probably wore a similar type undergarment to achieve an 18 inch waist and did so willingly because it was the height of fashion.

There are a small number of curves which cannot be controlled by a brace and then surgery is undertaken. About three per thousand adolescent girls have a curve which warrants treatment. Two of the three will be managed satisfactorily in a brace and one will require an operation.

It might be useful for you to have a look at our Frequently Asked Questions (http://www.scoliosis-australia.org/scoliosis/faq.html) about scoliosis.

With best wishes
Dr Scoliosis

Chic Chick
02-08-2010, 08:55 AM
Renee, you are so right!!

I got my brace at 13 and had to start eating smaller meals throughout the day. My hour off was as soon as dinner was ready... so i had time for my tea to settle before i jumped back into it.

Be careful on your first sneeze... i thought i would explode, but lived to tell the tale he he :)

28-10-2010, 07:33 PM
Hi Emily
I wore a brace for 3 years as i had (well still do) two curves - 40 degrees at the top and 29 degrees at the bottom. I am now 23 and need some inspiration to get up and do my stretches every morning so have started a blog. http://www.holyscoly.blogspot.com/
I would to hear about your progress and help you out with some moral support if need be.

07-11-2010, 07:34 PM
Hi Tamara I really do not like wearing it but i know it will help me:hug:.Thanks I will go on Your blog and check it out:). But I always seem to get angry with my mum when i wear my brace :sad:.

Thanks For Writing

14-01-2011, 09:43 PM
Hey Emily :)

Im 15, but i was just diagnosed with scoliosis a few months ago. I aswell didnt need surgery, however i did need a boston brace. So far its going pretty good :) you do get use to it, its a bit annoying in summer though due to the heat. I also get angry at my mum, but in the end i know she is only doing the best for me.

Stay strong Emily. xx :)

21-08-2011, 05:14 PM
Hi. I am 10, and I was diagnosed recently. Sorry for the lack of details, but I don't remember what my curves are.:( Anyway...I'm new here too.:)