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  #71  
Old 07-07-2014, 08:48 AM
Stephaline Stephaline is offline
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Join Date: Jun 2014
Posts: 2
Default Re: Meet and Greet

Hi there,
I'm Steph, I'm 28 and was diagnosed with adolescent idiopathic scoliosis when I was 14. I went through brace treatment which prevented some curvature growth, enough for doctors to feel i could opt out of surgery if I wanted to. I did opt out, but as it's been 10 years since my last check up I am nervous about going back to see how my curve is faring as an adult!! My last scan at 18 showed an S curve with 43 thoracic and 49 lumbar degrees.

I didn't feel like I had a lot of understanding or support when I went through brace treatment (and I only had 2 years in it so was one of the lucky ones really!) so I'm in the process of creating a website aimed at children & adolescents to give them support & information. I'd love some help with it, so if you're interested, please PM me

Anyway thanks for having me here!!
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  #72  
Old 09-12-2014, 04:08 PM
MicheleJ MicheleJ is offline
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Join Date: Nov 2014
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Default Re: Meet and Greet

Hi everyone,
I am 54 years old and have had back problems since I was around 30
I have never been formally diagnosed but my Chiro say, after seeing my X-rays 13 months ago that I have scoliosis and the beginnings of kyphosis.

I am in an enormous amount of pain and have a great deal of trouble functioning

My doctors have been swapping me form one NSAIDs to the next saying there is not much that can be done

I now have a new doctor who has given me a referral to a spinal injury specialist and said I will need to have a proper diagnosis and probably an MRI

My appointment is on 21 at January. I am very anxious about it and wonder if my Chiro"s diagnosis is correct considering neither of them actually showed me the reports, only the xrays
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  #73  
Old 16-12-2014, 04:34 PM
faerygirl faerygirl is offline
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Join Date: Feb 2012
Posts: 4
Default Re: Meet and Greet

Hi everyone, I thought I might introduce myself. I joined up a while ago however I have not posted on here until today I think. Anyway Hi.

I'm 55 and live in Brisbane and I have had scoliosis ever since I can remember - curves are around 65 degrees both ways. I haven't had any surgery on my back and I am interested in natural ways to manage scoliosis.
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  #74  
Old 14-05-2017, 07:16 PM
Shaz Shaz is offline
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Join Date: May 2017
Posts: 12
Post Re: Meet and Greet

Hi everyone,
My name is sharon, I'm 47 and have had scoliosis since infant.. I was braced from the age of 5-15.. I am now at the stage I need surgery as my curves are at 60 and 38, stenosis appearing in the lumbar... Thanks heaps Shaz
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  #75  
Old 16-05-2017, 03:14 PM
Lucyharry68 Lucyharry68 is offline
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Join Date: Jan 2013
Posts: 28
Default Re: Meet and Greet

Hi Shaz,
Welcome to the forum. I am 3 weeks post surgery. There is heaps of info and members experiences posted on this forum that I found so helpful. Where are you from? I'm in Melbourne.
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  #76  
Old 16-05-2017, 09:39 PM
Shaz Shaz is offline
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Join Date: May 2017
Posts: 12
Post Re: Meet and Greet

Thanks for the welcome. I'm from Sydney. It's wonderful to have such a forum with everyone sharing.. I look forward to hearing about your recovery and I'm sure I will gain inspiration from you all.. I wish you all the best xx
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  #77  
Old 19-06-2017, 07:50 PM
Beth Beth is offline
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Join Date: May 2017
Posts: 1
Default Re: Meet and Greet

Hi,
I'm a 30 y.o. in Melbourne with a 72 degree c curve with an anterior fusion (T10/11 - L3/4) booked for late August this year. Short version is I was diagnosed in my late teens (62 degrees) and the surgeon I saw at the time indicated I should not get surgery but I have had significant deterioration in symptoms in the last 3-5 yrs with increasing restrictions in movement/physical ability.

Any advice and/or information would be much appreciated (PM me).

Also, does anyone know where I can get a copy of the book by David Wolpert that a few people have mentioned was very useful?
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  #78  
Old 19-06-2017, 08:46 PM
Lucyharry68 Lucyharry68 is offline
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Join Date: Jan 2013
Posts: 28
Default Re: Meet and Greet

Hi Beth,

Welcome! I'm just on 8 weeks post surgery, T6-L2, also in Melbourne.
I had approx 68 degree curve prior to surgery and handing out till the 12 week mark to see what it is now.

There is heaps and heaps of information on here regarding advise and peoples experiences with surgery that was very informative in the lead up to my surgery. I do think that the surgery performed now allows for a quicker recovery that those who had surgery a number of years ago. I found that I had prepared myself for much worse. For example, not having to go to ICU after the op and going straight to a ward, wearing a brace being optional rather than mandatory for 12 weeks post surgery and being able to drive from 6 weeks post surgery.

If you haven't already, start building up those leg muscles with squats and lunges if you can - it will help your recovery

I got an electronic version of David Wolpert's book from Amazon Kindle on my iphone.

I have sent you a PM as well

Feel free to ask any questions.. Happy to help

Linda
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  #79  
Old 20-06-2017, 08:33 PM
Shaz Shaz is offline
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Join Date: May 2017
Posts: 12
Default Re: Meet and Greet

Hi Beth,

Welcome.... Hope you find the forum helpful... It's great to read other peoples experiences and how they have recovered.. I am also awaiting surgery, I have s curve, and like you the last couple of years things have declined.. Wishing you all the best.
Sharon
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  #80  
Old 06-10-2017, 03:13 PM
Backtothefuture Backtothefuture is offline
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Join Date: Oct 2017
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Default Re: Meet and Greet- 46M Melbourne- First time & nervous

I’m ‘starting out’ (again?) seeking clinical/medical help. I’m 46, Male, Melbourne based. Why am I starting to look for medical help middle aged?? I’d like to share a story- preserved by the anonymity of this forum- a first share. Naturally, no names, places per forum rules.

When I was a teenager, I noticed one shoulder higher than the other and that my back would ‘hump’ when I bent over to touch my toes, peering over my shoulder in a mirror I noticed with horror a lateral ‘S’ visage. I went to my parents but they discouraged medical intervention (misplaced religious doctrine mainly) so it wasn’t until I was 19 and ‘rebelled’ and saw a Chiro, a Dr and ultimately, an orthopedic surgeon. I was already deeply body conscious, a shy teenager that was already accustomed to avoiding the beach and ‘over-dressing’ to mask what I felt was a deformity.

‘Deformity’ was one of the words used by this Surgeon when he stepped me out of a small office in a Melbourne hospital in my underwear into a theatre full of students and medical professions- (approx 50) after having mislead me that there was a “couple of colleagues” in the next room that could assist resolve the question of surgical intervention or not. I was then paraded, a study. At one point, he said “do that thing” (indicating for me to touch my toes to demonstrate the ‘hump’ forming when I did).

I remember almost everything, what he wore, the faces of his colleagues, the students, the room and most of all the shame that I did nothing. I said nothing, even when he twirled his finger at me (“Do that thing…”) all I did is tilt my head like a confused dog wondering where the cheese treat is for the trick.

After I walked back into the smaller consulting room (office?) and put my clothes on, another more astute Dr knocked and entered, seeming aghast he asked me “Did you know that was an auditorium?”. I think he clocked the shocked look I had when walked out like an exhibit. I shook my head, mumbled something… he apologized…a lot, but I didn’t seek medical attention for another 17 years.

At 36 I grew so comfortable with my GP that I mentioned my back and he ordered some X-rays but I think mainly through ignorance advised that as I appeared comfortable and mobile, orthopedic intervention was unlikely at my age and it was sidelined again.

Now, after months of pain it’s impacting my life again- carrying my young children upstairs from the car when they’re asleep saw me staggering to the medicine cabinet, cramps and leg pains. Right now, I’m dad- and in their eyes, I’m bullet proof and yes, they’ll develop to a point where my humanity and vulnerability will be understood but for now- it’s my job to be a total rock for them (together with their mum) and I’m scared of failing… all of them.

So, here I am, pouring it out (very cathartic). When I stumbled on this forum (thanks google) I thought maybe…. Just maybe I can feel a connection (despite the anonymity) to others that might have done such things growing up like… avoid the beach, agonize over clothing choices to select those that were the most concealing.. rather than the most flattering, over-dress in warm weather, avoid relationships, self-exclude from social activities etc… or maybe it was just me and I handled it all rather badly.

Either way, this long-winded introduction serves two purposes; 1) It was cathartic like I said.. please forgive my indulgence and 2) Obtain qualified recommendations from people in Melbourne that have had spinal surgery and/or alternative treatments. The backstory gives context- I don’t think I could go knocking on specialist’s doors/ health providers somewhat randomly, I need to limit who I trust with my care to those that have gotten results for real people in Melbourne. Please, if you can spare a moment PM me your recommendations- I’m open to various treatments but primarily I expect that orthopedic intervention is the only course that will secure the results I need physically as well as psychologically providing I am a suitable candidate. Thanks so much, apologies if I bruised any eyeballs.
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